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Endometriosis UK
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MRI Scan

Hello everyone,

I was wondering if my endometriosis tissue was big enough, will it be visible on the MRI? Would like to know your experiences.

Xx💛

10 Replies
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Hi Sam-05,

If you have deep infiltrating Endometriosis, yes, sometimes it can be seen on scans, but there is also the possibility that it won't be. Everyone is different - mine was seen on an MRI and it was pretty extensive.

Endometriosis is best diagnosed and assessed by actually looking at the disease. A laparoscopy (or laparotomy) is the only means of making a definite diagnosis.

You can find a whole wealth of information on the Endometriosis UK website:

endometriosis-uk.org/inform...

I hope this helps.

RicEndoUK

Volunteer Moderator

3 likes
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Hi,

Well my gynae is suspecting that I have a DIE and I'm a little bit concerned about it.

Thanks for info. xx

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Mine wasn't seen on an MRI, but the damage was extensive. Instead they blamed it on an STI (which I knew wasn't the case). Wasn't till I had a lap that they said it was everywhere and had caused so many problems - needed major surgery to start ivf x

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Hi Music,

I'm sorry for what you have been through. Hope you are feeling better now.

Best wishes xxx

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Thank you. Hope you get a good specialist and some support/ pain relief and answers soon. Wouldn't wish Endo on anybody. Best wishes x

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Thanks a lot hun, and same for me, wouldn't wish this horrible experience for anyone.

Xx

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If the MRI is with contrast, a specialised endo radiologist will even see deep-infiltrating endo. A specialised physician can tell you what's going pretty accurately, but I doubt there are specialised radiologists in the UK.

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Hi Stefania,

I see, well I hope the hospital that I am going to has a specialist in radiology (I'm living in the Netherlands) gonna ask about that.

Best wishes xx

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Hi! In my experience, yes but it always depends on how big, where, and the doctor’s skill and experience with endo. For me, 5 medical professionals including a radiologist could not detect it in my MRI. These were coagulation/ablation surgeons. But when I saw a laparoscopic excision specialist, he noticed it within minutes and also saw signs in my ultrasound. I really recommend seeing an excision specialist and joining Nancy’s Nook on Facebook for anyone who suspects endometriosis

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Hi Krithika,

When I had my physical exam, the gynae could feel the endo tissue and saw signs of it as well during the transvaginal ultrasound ( luckily she's an endo specialist surgeon) Hope I got some useful results from the MRI.

Thanks for your reply and kind regards.

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