Scan MRI: I got scan on 24th MRI pelvic... - Endometriosis UK

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Vasiliki99 profile image
27 Replies

I got scan on 24th MRI pelvic , does it ever show any thing like endometriosis? Thanks

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Vasiliki99 profile image
Vasiliki99
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27 Replies
Kirsty360 profile image
Kirsty360

Hi Vasiliki99,My endo diagnosis was made via CT scan/MRI, I know it is often missed on images but I was quite fortunate that it showed up.

Best of luck for the 24th 🤞🏻

Vasiliki99 profile image
Vasiliki99 in reply toKirsty360

Thanks very much

Annabelannabel profile image
Annabelannabel

It can show endo possible more severe endo as it can be seen easier. If you do have endo hopefully it shows because it can be so hard to get a diagnosis I hope you get the care you need. Annabel x

Vasiliki99 profile image
Vasiliki99 in reply toAnnabelannabel

Thanks

Avourneen profile image
Avourneen

It is missed sometimes but for the majority (thousands od women who post here too) an MRI picks it up and shows it quite clearly. My diagnosis was via MRI as are most women but for some reason (sometimes having a poorly trained sonographer doing the scanning) there are occassions when it doesn't show.But thechances are it will, if it doesn't and you have what you know are endo symptoms keep pushing for help.

Vasiliki99 profile image
Vasiliki99 in reply toAvourneen

Hope I get a decent one

Vasiliki99 profile image
Vasiliki99 in reply toAvourneen

It's true seems some need laparoscopy thingy , but then it's like will get it to a better level of pain without the endometriosis I hope for those affected there are treatments that are going to help them

Kaita16 profile image
Kaita16

Mine was diagnosed via MRI - tends to show deep infiltrating endo only though, but still a useful tool

EvilEdna77 profile image
EvilEdna77

I wa diagnosed with stage 4 endo in July, large ovarian cysts and fused bowel all from an mri. I was immediately put on prostep which has been a god send and referred to the specialist endo team. I met with my gynaecologist last week and I am now on the waiting list for a full hysterectomy and endo removal. I am very grateful that mine showed up and I will have the correct and very experienced surgical team in place without having to have multiple surgeries beforehand. The mri itself took about half am hour and I almost fell asleep during it.

Vasiliki99 profile image
Vasiliki99 in reply toEvilEdna77

That's good I hope it all goes well the hysterectomy and endo removal go well and the gynae supports , the medication sounds good du need any natural or bio identical or medical HRT? I was on 2 years bioidentical HRT but now at 42 my periods look like they r menopausal which I was told by endocrinologist and this is the way it is..... hopefully be relaxing I presume pants bit no trousers should be then the MRI of head that revealed pituitary adenoma....god knows what the tumour is doing nothing hopefully xxxx

Cocoacupid profile image
Cocoacupid

Hun it only shows up deep infiltrated endo and cysts and things like that. If you only have mild endo it may not show like the pockets of it xx

Vasiliki99 profile image
Vasiliki99 in reply toCocoacupid

Pockets of it maybe and yet the laparoscopy is also difficult if you have ME potentially.. ....thanks Cocoacupid.

Cocoacupid profile image
Cocoacupid in reply toVasiliki99

Aww sorry 😢 I had sepsis after lap but am having more surgery soon had my notification from nhs as to where I want to have it. Xx after this bowel operation will have to potentially have another operation for a hysterectomy xx I do hope they find it for you . Xx

Cocoacupid profile image
Cocoacupid in reply toCocoacupid

Think I got sepsis as had three operations within six months as had two carpal tunnel surgery’s one on each hand one In November and the other December then in April this year had the lap xx

Trekkie84 profile image
Trekkie84

Yes, it does but only to an expert radiologist. Many may still miss it. Make sure you get the cd with the results and ask for a second opinion if you don't feel confident about the results.

Vasiliki99 profile image
Vasiliki99 in reply toTrekkie84

Thanks 😊 CD and extra opinions in UK difficult to push for much really but it's good to know xx

Trekkie84 profile image
Trekkie84 in reply toVasiliki99

Best of luck xx

megiiva profile image
megiiva

I had stage 4 endometriosis didn't show on CT scan ,then they opened via laproscopy and found it everywhere, in my pouch of Duglas,ovaries, tube,bladder and bowel. All removed with excision. As I still have same symptoms now 4 months after the operation the surgeon send me for MRI again nothing But the doctor told me it may no show. Now treating an infection Streptococcus B,Ureplasma and Sibo, He said come back after the treatment for those and if still have the symptoms, will do laproscopy again to diagnose and have a look....I'm still daily in pain. ALL the best on 24th xxx

Vasiliki99 profile image
Vasiliki99 in reply tomegiiva

Thanks 👍 it's so complicated pelvic pain it's terrible to be in pain though the doctors have removed it and then you feel the pain goes on and on , I really the infections get better and the laparoscopy goes well. I think the MRI won't prob reveal and it is so sad and hellish xxxxxx

Avourneen profile image
Avourneen in reply tomegiiva

That is not a suprise as from what I've read CT is not the right scan for endo. Don't know why they would send you for that. Sounds like you've been to hell and back with infections and it coming right back after your op. That does happen but after 4 months is unusual, I hope you get over all these hassles and things improve without the need for another lap. Fingers crossed for you.xx

Vasiliki99 profile image
Vasiliki99 in reply toAvourneen

It's very difficult when things are painful or there are infections it's so unfair on us who suffer and I don't really what we can do but we will get through it.....

megiiva profile image
megiiva in reply toAvourneen

Thank you ,keeping it positive xx

Vasiliki99 profile image
Vasiliki99 in reply tomegiiva

It's good to keep bright xx

megiiva profile image
megiiva

Xx

Kieraface profile image
Kieraface

I had my endo and adenomyosis diagnosed by MRI so it’s definitely worth it xx

Vasiliki99 profile image
Vasiliki99 in reply toKieraface

Thanks I hope so as 8 am is early I don't want stuck in traffic or there too long will wear mask as had COVID we had a spike in my area 2 weeks ago . Also the hospital 15 mins away v good hospital but I may be in pain as usual anyway it's prob just a check really.

Vasiliki99 profile image
Vasiliki99

i had it it was tiring the noise and claustrophobia if my head had been any more enclosed with ME it wud been even more difficult

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