Called in for second mri scan!! - Endometriosis UK

Endometriosis UK
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Called in for second mri scan!!

victoria044
victoria044

Hi, I have just received a letter from the mri department saying my consultant wants another mri scan and also tests for kidney functio. My next scan is a week Thursday. This is my second mri scan my last one was two weeks ago. Have to say I'm alittle concerned as they don't order these things unless they have found something bad. Any advice pls as to why or what they might have found!!! Xx

11 Replies
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just wanted to say good luck, keep positive, xxx

victoria044
victoria044
in reply to Tboag

Thanks tboag, I will try my best but I already know the endo is very severe and I'm scared can't help it I have a bad feeling this time round xx

They may have found endo on or in your urinary tract or evidence of your endo affecting kidney function (ie swollen/dilated kidney)

I have endo on my bladder,but having really bad kidney pain. Anyway I've had kidney ultrasound to rule out stones and they've tested blood and urine for infection. They did find blood in my urine but no infection. I suspect my endo may be in bladder as well.

I've read that it's rare for endo around urinary system..about 1-4% on bladder..and it's even rarer for it to grow on or in kidneys.

However if it's constricted your ureters, that could cause some kidney issues.

I'm having an mri end of month as well. I found a really good medical paper on endo in urinary system which I'll try and link.

xxx

victoria044
victoria044
in reply to angelyn

Thanks angelyn, any advice would be great! Good luck for your scan xx

victoria044
victoria044
in reply to angelyn

Thanks hun xx

angelyn
angelyn
in reply to victoria044

I couldn't find the link of the pdf I got so tried that site..but it asks u to subscribe. If you type clinical manifestation bladder endometriosis into Google there's a pdf from a site called ics. The pdf is labelled 719...

Failing that the endo UK site has a basic leaflet as well.

Xx

victoria044
victoria044
in reply to angelyn

Thank you so much xx

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victoria044
victoria044
in reply to Hidden

Hi Lindle, thank you for your message. Yes I am with top endo specialist who is on the list. I have already been told that the endo is very severe and is covered my left ureter. Apparently it's everywhere. I suffer with excruciating back and kidney pain, I lost over a stone in weight,without trying,in 4 months and feel really ill daily. I guess having another mri is for my consultant to double check where endo is etc but my last mri scan took well over an hour,which is why I'm surprised to be called in for another one so soon,it's only been 10 days since my last scan. I will be seeing my gp and consultants next week so I will be asking for my results from the last scan. Thank you so much. You are a gold mine of information and I am very grateful there's someone like you who we can all come to with our concerns. Many thanks hugs xx

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