Answers finally!: Hello. I'm new to this... - Endometriosis UK

Endometriosis UK

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Answers finally!

Hannahsbananas86 profile image
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Hello. I'm new to this forum, I've been on a few times and read other people's stories and experiences but I've never posted before because....well...I wasn't really sure if I had endometriosis or not but all my symptoms pointed that way...

Over the years I've had a few various problems, from my early teens when I had extremely heavy periods, to my late teens when I was admitted to hospital with something that was never really explained to me, basically I was bleeding really heavily, having extreme pelvic pain, I was given morphine and was in and out of consciousness for a few days. I was told they were doing tests and they gave me an antibiotic. I was released a few days later with no explanation. One week later I received a call & they told me I had had chlamydia. After this I was devastated and split up with my (cheating) boyfriend. It was only years later that I realise the symptoms I had were actually not that of chlamydia, but Pelvic Inflammatory Disease, caused by the STD. I was so angry about this and felt quite let down by the hospital.

Moving into my 20's my periods were still heavy and caused me a lot of pain over the years bit this to me was just 'normal' and I had various different contraceptives to try and help them. By the time I was about 27, I started to have different pain which I pin pointed to ovulation. My periods got lighter, I started gaining weight and I was always tired. Back pain started to cripple me at the most random times. My hips were aching. I was bloated and miserable. And over the years I have seen various doctors who never really took me seriously at all. I always felt fobbed off. I could tell you all about the experiences but we've all been there! After thyroid tests, blood tests, ultrasound scans, all of which took around 3 years to happen, I finally got sent to a gynae last year who said I had PMS and sent me away. I called the same clinic about 30 mins later in tears and told them how let down I felt. They put me in touch with the Clinic Director and she got me back in and really listened and chatted through everything with me. We decided to try me on a pill, because if it was endo it could help, if it was ovulation it could suppress it and either way we could use it as a diagnostic tool. So i started taking Katya, back to back with no break for first 3 months. After my first break, I bled a little and the break itself was fine. After the 7 days, I was again crippled with back pain and pelvic pain. I was finally referred for a laparoscopy. That was in October. I had my surgery yesterday and they said they found 2 small areas of endometriosis (which they treated then), a large fibroid in my uterus which is causing my uterus to tilt backwards and a blocked fallopian tube on the left.

So, I've been sent home and told I'll have a follow up gynae appointment but I have no idea what to expect next?! I've to stay on my contraception pill for now, because it has helped manage the symptoms. All in all I'm relieved, I cried with sheer relief that it's not all in my head, but what does this all mean? Anyone else had experience in these areas?

Thanks,

Hannah xx

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Hannahsbananas86
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Purplecard

You are not the only one exact same gp fobbing me off attended a&e more than once but I kept on pestering until something was done i was the same thinking i was over reacting and it was all in my head because of the way I was spoken to at the gp surgery even after being referred to gynae urgently as possible ovarian cancer i was told by doctor there just normal cyst nothing to worry about but then did internal and I nearly flew off the bed in excruciating pain at that point a consultant got involved and straightaway he suggested Endo with my symptoms. Don't give up seek the answers you need. Hope you feel better soon.

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