Just been diagnosed : Hello After having an... - Endometriosis UK

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Just been diagnosed

Loopylou1994 profile image
6 Replies

Hello

After having an ectopic pregnancy 3yrs ago I have now just been diagnosed with Endo, I am now waiting for laparoscopy and dye test. I was just wondering how long it took for people to recover; and looking for some positive success stories. Starting to get me down after 3 years still haven’t fallen pregnant :(

Thanks

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Loopylou1994 profile image
Loopylou1994
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6 Replies
PurpleSparkles profile image
PurpleSparkles

Hiya,

Am kinda in the same board- TTC no2 for 18 months and got diagnosed with endo yesterday when I had an exploratory laparoscopy and dye test. An ultrasound and hysteroscopy nearly 2 years ago didn't pick it up.

Currently doing ok, not soon much pain but very tired. They've said 1-2 weeks recovery- though I think it depends on how much they need to remove as could be more/ less.

Too early for success or not, but good luck. It's really hard, but try to keep positive.

Loopylou1994 profile image
Loopylou1994 in reply toPurpleSparkles

Thank you; it is hard but like you said I’m trying to stay positive. Good luck

Marmite83 profile image
Marmite83

Sorry to hear about your ectopic Loopylou. We tried for 18 months, suffering a miscarriage in that time, before falling pregnant with our daughter. I had just been diagnosed with endo and then a week later discovered I was pregnant and she's now two and a half so it can still happen!

We've been trying for a second for 15 months now. I had a laparoscopy in Jan to remove cysts form my ovaries, lesions from my tubes and free up an ovary from the pelvic wall and my recovery was pretty quick. After a week I was back at work and after two weeks I felt completely normal again. I had a very heavy first period nearly a month after surgery but the pain wasn't too bad. I have PCOS too so I've just been prescribed Clomid and advised to take Inofolic to help with ovulation and egg quality so just keeping our fingers crossed that it will all help me get pregnant soon. Try to stay positive, I know it's hard but you're on the right track! Good luck x

Loopylou1994 profile image
Loopylou1994 in reply toMarmite83

I’m so glad to hear someone has had a positive outcome and congratulations.

But also sorry to hear you are struggling this time round. I’m also getting married next year so trying to focus on that and stop trying so hard type thing.

Good luck and thank you xx

Faith27 profile image
Faith27

Hi! We're in very similar position to yourself. We have been TTC for over 2 years now with no joy. I'm on the waiting list for a laparoscopy and the dye test too! Hopefully we both won't be waiting long for this to come around.

I can't offer any words of wisdom or give you any reassuring stories as I'm sat in the same boat as you lovely but just wanted to wish you well and offer a friendly ear if you ever want to chat!

We're TTC our first and have been together 9 years.

The one thing that may give you hope.. is that I've read the dye test and if they remove any endo, that you can be super fertile after the op so that's a positive! And I guess just knowing what you're dealing with must help move things along.. I know it's an anxious time and I'm shitting it lol but.. after the lap, we can possibly look into treatments such as IVF so that's also positive!

Yep I appear to have my positive pants on this evening (they've been hiding for the past 2 weeks if I'm honest and I have had plenty tears and fears)! Xx

Loopylou1994 profile image
Loopylou1994

Hello, so sorry to hear your going through the same, unless you are In our position people don’t realise the disappointment each month type thing. I have been told it’ll be 3/4 months so hopefully won’t be waiting too long.

Thank you, it’s nice to be able to talk to people in the same boat, likewise I can be an open ear as well. Me and my partner have been together nearly 7 years, after the ectopic 3yrs we stopped trying for a year because I didn’t feel ready was too scared to try again and then when we did decide we we’re ready there’s something out wrong that gets me down.

Super fertile would be fab haha! Yeah I have good days and bad days but taking each day as it comes.

Thank you for your support, hope you have some luck too xxx

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