Just been diagnosed : Hiya everyone i have... - Endometriosis UK

Endometriosis UK

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Just been diagnosed

XxlovemyboysxX profile image
9 Replies

Hiya everyone i have suffered with pelvic pain and other symptoms for nearly five years now and only just recently got diagnosed with endometriosis (friday) and i am just looking for ways of helping to ease pain as i was sent home with no pain relief what so ever :/

Does anyone have any tips? xx

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XxlovemyboysxX profile image
XxlovemyboysxX
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9 Replies

Go to the docs and ask for some pain relief!! I get that useless doctor thing-was hospitalised for 9 days and it took half that time to be given any proper pain relief but, to b honest, it didn't work half as well as a scorching got hot water bottle. Hot bath on all fours. That helps a bit. When I was in hosp I needed lots of diff painkillers all at once to get it slightly under control. Was it an gynae who diagnosed you? Please go back and ask them for pain relief. Feel better soon xxx

XxlovemyboysxX profile image
XxlovemyboysxX in reply to

Thank you ... Yes it was a gynae who diagnosed me i was so upset at the hospital trying to tell them how many medications id tried before and that nothing works for me ... just feel like they try and push me aside sometimes xx

jelly1967 profile image
jelly1967

I swear by peppermint tea and peppermint capsules and ginger when feeling sick! You should of been given painkillers .... However personally I feel worse if I take anything stronger than a nurofen !!! X

XxlovemyboysxX profile image
XxlovemyboysxX in reply tojelly1967

I have co-codamol which i got from elsewhere but dont seem to be doing much i had my lap on friday and for some reason i have really painful shoulders and my back is killing me at the moment feel like someone is sitting on my chest dont know if its common but feel like if i go back they wont listen xx

M123 profile image
M123 in reply toXxlovemyboysxX

Hey!

I had my laparoscopy last Tuesday.. And the shoulder and back pain is awful! It's from the gas and fluid they fill your tummy with. I was told to expect it and given pain relief so I am shocked you didn't recurve anything or any information! I tend to use a hot water bottle for the shoulder pain but it is easing so it will get better! Feel better soon!

XxlovemyboysxX profile image
XxlovemyboysxX in reply toM123

i will try that thank you it is awful feel like im carrying my son around on my back all day :( x

CarlyPhinikas profile image
CarlyPhinikas

Hiya, so sorry to hear you were sent home with nothing to help with the pain. I manage my endometriosis symptoms completely naturally now. I was diagnosed in 2013 and put on back to back pill packs to stop my periods, but it came back after 6 months. I read up lots on it and came across a book written by Dian Shepperson Mills - it links endometriosis and diet. She does consultations so I went to see her and she recommended what to cut out and supplements to take. It's basically an anti-inflammatory diet. I don't eat any wheat, gluten or cow's dairy, and hardly any processed food, red meat, sugar, or soy. Alcohol is limited too! Since I've had endo I can't eat a lot of fruit or drink juice (not sure if they're connected) so I cut that out too. When I came off the pill to try and conceive I started doing yoga and having acupuncture which have been amazing. Doctors I've seen have never advised on any of the other things you can do to help yourself - none of the hormonal treatments get to the root of the problem. It makes me so angry! I only have flare ups if I eat things that trigger inflammation, or at different points in my cycle - but it doesn't stop me living my life anymore. I also use a tens Ova + machine for period pain. Hope that's helpful and let me know if you want any more info! X

XxlovemyboysxX profile image
XxlovemyboysxX in reply toCarlyPhinikas

brilliant i will look into the book and yes i was looking everywhere online yesterday to try and find a diet plan as such ... im a fussy eater but if it helps im up for trying anything :)

do you have any tips on a website that has lists of foods to eat and not to eat?

thank you xx

CarlyPhinikas profile image
CarlyPhinikas in reply toXxlovemyboysxX

It's really hard at first but once you start to feel better it's all worth it. This website might help endo-resolved.com/diet.html

Good luck with it x

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