Crippling pain :-(

[cmw1993]

Hello all..

I am currently awaiting a laparoscopy and hysteroscopy.

My consultant is sure I have endo and also they’ve discovered I have a septate uterus hence the second surgery to investigate.

Today is my 3rd day of heaaaavy bleeding, I hadn’t had periods for about 4 years and since September I’ve basically been non stop bleeding every other week.

Some weeks it’s fresh heavy red blood, others it’s really dark almost black, old blood.

But what’s the most worrying is the pain. Oh my the pain is actually unbearable. I have lower back pain, shooting pains in my thighs, shivers and dizzy spells. Bloating is 10x the size of what I normally am and my hormones are all over the place.

Had numerous contraception changes over the years and tests but no other explanation for these symptoms. Everything is pointing to endo.

I have a condition called Fowler’s Sydrome too. I have a metal “pace maker” device implanted in my right buttock which has a wire that is connected to the S3 nerve in my spine. This sends signals to help my bladder work..

Long story short they are longing out my lap and other op due to my bladder condition and needing to have my bladder surgeons present (no idea why)

How do you all cope? I juggle two jobs and I am trying my best to try not let this get to me. I have had so many health problems but none have scared me like this is.

I’m 25, hoping to start a family soon. I am scared about that so much. What if this is going to jeopardise it all?

Just need some help with how to cope