F**king fed up

[hp24]

Absolutely hate this illness, being diagnosed 2 years ago an suddenly getting much worse.

My parents are constantly saying my symptoms aren’t related to my endo which they no nothing about, been back an forth to the doctors this week and just been to the hospital at half 11 at night because I had a sudden shooting pain today that felt like my stomach was going to explode. Only for the doctor to tell me it’s not an infection or anything it’s most likely to be related to my endo which is what I knew in the first place.

Having to deal with work as well as trying to sort my own health out is just stressing me out as I work with all men an just get told its only period pains I should be used to it by now.

Just hate how am 24 an feel like my life constantly revolves around the doctors and this awful illness that no one seems to understand.

Sorry for the rant just completely fed up with it now.

Xxx

[Ayooshi]

Hey girl I know how u feel, I have to carry on like I'm not suffering too and it's the worse when everyone just thinks ur lazy because u physically too exhausted to get out of bed and the pains too. Have u tried using herbal remedies to ease the pain somewhat and dietary changes. I have started to take black seed oil on empty belly in the morning and celery juiced up too in the morning and I am finding my symptoms are less severe x

[stephani]

Hey! Im in the same boat.. Had laparoscopy in 2017 but symptoms are coming back worse now! I feel the coil only can save me.. no pills are working anymore.. Have you tried mirena?

[hp24 in reply to stephani]

Yeahh Iv has the mirena for 2 years now so I don’t actually get periods but obviously something isn’t right now 😩 x

[Levi_jazz]

Rant away we all understand how you feel, it’s such a worldwide problem but no one speaks about it, people just pass it off as something minor and compare it to a bad period! They have no effect it has on people’s life, I’m only 21 and it has impacted my social life and work so heavily! The stress of constantly having to go to the doctors or waiting for specialist appointments when none of it works! People just pass it off as being a drama queen but they don’t realise it’s constantly there! X

[Matt_amber]

hey! I can relate! I was in so much pain and no one would / could understand. i was told i was making my pain up for attention and my GP tried to force me to see a counselor and take anti - depressants. Only you know what is going on with your own body. It took 2 years for me to get diagnosed and even now when i am in pain everyone says i shouldn't be because i had a laparoscopy 3 years ago so its gone for good. No one will ever fully understand, which you learn to deal with and cope with by yourself. Just try to make sure your doctors understand, be strong and firm with them,! I hope it gets a little better for you! It will never be easy but you can cope! xx

[applebird]

Hi,

I've been there, struggled from 10, diagnosed at 24/25, and life did very much revolve around doctors. What I will say is that through time two things happened for me 1. acceptance that endo is part of my life and I have to deal with it which means 2. making adjustments - try out different treatments, diet, therapies etc and see what works for you, work out what makes your endo worse (for me if I am stressed it goes crazy for instance). It's all about careful management which you become better at as you get to know the disease and yourself better. Once you have it nailed what works for you it has a lesser impact on your life. This also happens as you get older too - I found it incredibly tough at 24 when all my friends were massively social/travelling/working like crazy, don't feel like you have to keep up - be you, take care of yourself and don't worry about anyone else - concentrate on getting better xx

ps re. work if you have a diagnosis you should be able to have reasonable adjustments made under disability regulations x