Adenomyosis - need a bowel surgeon & what... - Endometriosis UK

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Adenomyosis - need a bowel surgeon & what will they do?

AllthatGlitters profile image
8 Replies

I have chosen a gynaecologist to carry out my laparoscopy, hysteroscopy and biopsy’s (they think I have Endo due to pain, bleeding, flooding).............

The NHS consultant told me that a bowel surgeon would need to be present because I have Adenomyosis.

Can anyone offer advice on what the bowel surgeon would be doing?

As always i appreciate any advice x

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AllthatGlitters profile image
AllthatGlitters
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8 Replies
Kirendo profile image
Kirendo

I was told its because the womb in webbed in to ur uterus but in some cases the bowl could also be caught both enometriosis and adenomyosis is like chewing gum in side your stomach it locks everything together only just found out my self that i have adenomiosis had endo since u was young but had a op 2 days ago to lazer my endo and got told i have adenomiosis so still reserching my self hope this helps

AllthatGlitters profile image
AllthatGlitters in reply to Kirendo

Thanks Kirendo, I am also researching and asking lots of questions on here. Thank goodness for this forum x

luthien profile image
luthien

Hey, I had exactly the same stuff going on in my lap.

The bowel surgeon will be present for anything to do with the bowel / rectum; it's just because that's not the gynae specialist area so they like to have an additional specialist surgeon that knows the complete anatomy of that area - blood vessels, muscles and ligaments.

It's nothing to worry about, in-fact it's better because you know they're being extra careful.

Ask what they're expecting your recovery to look like; overnight? prep (enema - home or hospital)? pain meds? etc. It's good to know. The bowel is further down so if they're doing anything around that it'll be a bit longer op, with more moving of stuff, so expect recovery to be a bit longer, and bowel movements to take a few days to be normal - they sometimes give you stool softening tablets.

AllthatGlitters profile image
AllthatGlitters in reply to luthien

Thanks farahziya always so helpful with your own experiences! This makes sense to me now. How long do you think recovery would be?

I tried to PM you however your name doesn’t come up on the list.

X

luthien profile image
luthien in reply to AllthatGlitters

I just click on people's names on here!

I was signed off for two weeks for my bowel excision of endo. Then had a follow up and signed off for a further week. I had my period and it was painful so I went to my GP and she signed me off for another two weeks. So a total of 5 weeks. My specialist says it's common to take longer for bowel or near bowel ops as it's so deep down and it's more invasive than a hysterectomy - that only requires one surgeon, so that tells you something!

Recovery time is different for different women - I found I was tired a lot more (compared to my first lap excision of endo everywhere but bowel), sitting down on a seat hurt, sofas were okay. My first two periods were horrible - expected it but didn't expect to feel so wiped out, and bloated / uncomfortable. I'm just over 4 months post op and my last period was probably what I would call normal (first ever normal one) stomach cramps were very much reduced; I did need a few hours off flexi as I needed some me time at home with my duvet and a hot water bottle.

applebird profile image
applebird

Ok, I don't really understand the logic there, adenomyosis is endo of the womb itself where the tissue infiltrates burrowing down into the womb creating masses that are somewhat like fibroids. So it affects the womb.

You would generally need a bowel surgeon if you have a nodule of endometriosis on the outside of it that could/has grown in or because endo has stuck everything together, including the bowel like spider webs.

In that case they need a bowel surgeon there to guide the work so that the bowel isn't damaged, an endometriosis specialist will carry out excision of the endo tissue growing where it isn't. Damage to the bowel can be very dangerous so having bowel surgeon is important to protect you x

AllthatGlitters profile image
AllthatGlitters in reply to applebird

Thanks applebird they have not mentioned fibroids on my bowel but then I never queried why I would need a bowel surgeon. It’s all very quick when attending appointments isn’t it x

applebird profile image
applebird in reply to AllthatGlitters

Yes, a lot to take in! I always bring my hubby as I forget half of what they say. You can only get fibroids in the womb and I meant that adenomyosis can look like fibroids on a scan (but it isn't).

What you could do is ring the hospital you saw the doctor at and ask to be referred to his/her secretary; say you don't understand why and would like clarification. And/or ask your gp to see the letter they will have been sent from hospital detailing what plan is etc. x

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