Hi, I'm 3 weeks post op from major excision surgery for endo & a total hysterectomy (ie uterus & cervix) removed for Adenomyosis.
Adeno can show up on a scan. Your uterus may appear enlarged or bulky. Also this may be felt during an internal exam & your uterus may be very tender to touch.
They can undertake a biopsy of the uterus to try to determine whether it is Adeno. This can either be undertaken under a general anaesthetic (usual if you are having a diagnostic laparoscopy at the same time), local anaesthetic or with pain relief.
Unfortunately with Adeno it can sometimes be difficult to formally diagnose even through hysterscopy as it can be diffused throughout the muscle of the uretus walls. The biopsy is so small it's like looking for a needle in the haystack meaning it's easy to miss. Even after hysterectomy (removing the uterus) they would not test all of the uterus, only small samples so unless the uterus is obviously enlarged or bulky the sample may not show any evidence of Adeno.
As such Adeno is quite often diagnosed through symptoms alone. In my case my uterus and cervix were, what my consultant referred to as, very tender" during an internal exam. I say it felt like I was being attacked with a knife! I also constantly had a dull heavy feeling in my stomach as if I was carrying around a bowling ball, irregular and heavy periods, nausea, headaches and sciatic pain most days running down the back of one or both thighs with my legs feeling like dead weights - all symptoms apparently.
There are treatments for Adeno such as hormonal based meds such as they use in endo and/or meds to manage the symptoms. But ultimately unfortunately the only cure for Adeno is hysterectomy.
I opted for hysterctomy but my consultant is adamant that it's important to preserve the ovaries due to health benefits. Unfortunately a lot of the research says that even with ovary preservation it is likely that within 3-5years the ovaries will stop functioning meaning the menopause will begin 😣.
That being said hysterectomy was the right option for me as the symptoms I was experiencing were just too debilitating & tiring on a day-to-day basis. I only had surgery 3 weeks ago so it's too early to see if all the symptoms have been eradicated. However the sciatic pain has gone so I am very hopeful!
I hope this helps & I wish you all the best.
If you have any other questions please feel free to ask, x