Folic acid and Endometriosis : Because of... - Endometriosis UK

Endometriosis UK

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Folic acid and Endometriosis

AnnaMae profile image
8 Replies

Because of bouts of low energy and exhaustion, I have self medicated on Folic acid supplements which has helped a lot. I am sure that I take the correct dosage. However, I only noticed that it has made my cysts and pelvic discomfort a bit worse. I now have that feeling of something trapped/crawling around my pelvis. That sharp-dull ache at the position of the cyst has increased. I am now aware that folic acid could encourage the growth of abnormal cells. I am conflicted because I don't know how to deal with the fatigue and tiredness. My mum and aunt have endometriosis and noticed increase in pain after some days on Folic Acid.

I want to tell anyone on supplements to be observant and also to know how your symptoms are coming along while you're on the supplement.

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AnnaMae profile image
AnnaMae
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8 Replies
Jenifer99 profile image
Jenifer99

Omg thanks AnnaMae for the info. I will definitely keep an eye on my symptoms

AnnaMae profile image
AnnaMae in reply to Jenifer99

I think I would benefit from folic acid only if I was trying for a baby right away. Otherwise, it's fueling my endo 😢 I have to find another supplement/food to help my energy levels.

Jenifer99 profile image
Jenifer99 in reply to AnnaMae

Omg am also taking it just to prepare my body too. Please do let me know if you found any other supplements that can help and not to fuel endo. X

Loopy9 profile image
Loopy9

I’ve been taking it as TTC but as we’ve been unsuccessful for a year it’s 14 months of unnecessary supplements. Hope they’re not making it worse :(

BlueTit98 profile image
BlueTit98

Hi,I've not tried folic acid but have heard it's good to take if you're TTC for healthy spinal cord development of the baby. I take a lovely supplement called Floravital and it's the liquid iron supplement, plant based and comes in gluten free or non. Also I take ocean pure omega 3, derived from algae as fish don't produce omega 3 they just eat a lot of it! This is very anti-inflammatory just make sure you don't take omega 6 as that can cause inflammation. Maybe try rubbing clary sage essential oil mixed in coconut oil on the areas that are painful for you, I do that on the bottom of my back and apply a heat pack that helps a little. Hope you get some relief 💛

naryshkin profile image
naryshkin

Do you take vitamin B12? It has helped with my sluggish energy levels, particularly since turning to the endo diet. I used to drink a barrel of brewered coffee, but now usually manage with teas instead.

Vostok profile image
Vostok

I have found this threat searching for more people who have experienced the same I did. Last year I had surgery to remove vowel endometriosis. For almost a year it didn't come back, so I thought that it was gone for good. I started trying to conceive and my gynecologist recommended taking acid folic and some more vitamins. After starting taking them my endo was back. After that, I started a gluten and dairy free diet and I quit the folic acid thinking that first I wanted to get better. After 3 months of diet and no acid folic, I felt great again, like the endometriosis was gone. A month or so ago I started with the folic acid again and surprise the endo was back. It started getting really bad, so I quit the folic acid and you know what? 10 days without it and my endometriosis is almost gone again! So yeah, Acid Focil helps my endometriosis to grow.

Cat-24 profile image
Cat-24

That's exactly was I'm experiencing now while on folic acid. I don't know whether to stop taking it. I'm trying to conceive

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