Completely fed up now

[SufferingSilently9]

I'm really starting to get low now about this constant pain without a diagnosis and nothing seems to stop the pain. I went to a different gp but he only gave me naproxen and they do nothing to reduce the pain. My next appointment is in January with a Gynae and I'm still waiting for a pain clinic letter for an appointment with them.

I'm at my wits end and without any form of diagnosis, I feel like no one else can help me. I'm just so fed up.

Thanks for reading, I appreciate everyone on this forum. Xxx

[Doglover5]

Hi sorry to

Hear you’re suffering. Make sure to take the naproxen a few days before your period starts as this helps. All I can say is to make sure you push for a laparoscopy to diagnose you. Even at consultant gynae stage, he said ‘I don’t think you have endometriosis but we will do a lap to reassure you’ and low and behold it was extensive and stage 4. We know our own bodies and what pain is normal.

If you don’t get anywhere I suggest booking a private appointment with an endo specialist (mine cost around 250 pounds) who can then refer you back to NHS for an operation if they think it’s needed. It was a lot of money but worth it. Good luck you’ll get there eventually xxx

[SufferingSilently9 in reply to Doglover5]

Thanks so much for responding, Poppsicle. I'm currently on brevinor so haven't had a period in 6 months but the pain is daily and back up to horrific levels that it was when i was first referred. I am up to 500mg naproxen twice a day everyday it doesn't seem to work at all

I had a lap in march which was unconclusive and had to push via a private gynae to do it for me on the nhs. I've struggled with various issues since i was 8 (I'm now 20) and all my doctors now seem to think I'm healthy but with health anxiety especially now because a lap came back clear (despite the surgeon not going very deep to check and only checking places quite high up such as liver not checking deeper such as bowel or bladder - where most of my additional symptoms seem to be linked to.) I'm just really hoping that someone can figure out why I've been in 'unconclusive' pain for so long...

[Nics123 in reply to SufferingSilently9]

Hi,

Have you spoken to your gynae about trying zoladex?

[SufferingSilently9 in reply to Nics123]

Hiya, yes I have however I don't do well with injections and I already get migraines and hot flushes so not sure if i could cope with false menopause symptoms lol

[asoullessstatic]

I am so sorry, to get the most out of the naproxen make sure you take each dose exactly on time with food (naproxen can damage the stomach so you need to protect it a little bit), but often or not these need to be used with pain modulating drugs like amitriptyline or nortriptyline. These drug affect your nervous system and basically turn the pain nerves down a few notches and can help in the long run. They will discuss this with you in the pain clinic.

Write EVERYTHING down. Get a diary, and between now and the pain clinic write every single symptom down and the date and time. This will monumentally help in spotting patterns and in figuring out if there’s a pattern to the pain, and what kind of pain it is. Keeping a diary like this was the only reason my GP has taken me seriously and sent me to gynae in the first place. I found it really useful as well in trying to convince myself it wasn’t all in my head. With the awful GP I had for 10 years who made me feel horrifically stupid and crazy I had something solid written down that I could take in and show them and I didn’t have to explain it, and it helped with communicating just how much pain I was in all the time. Plus I got to decorate it so I turned it into a strange health arts and crafts project. I don’t know it really helped me psychologically as well because I was like, proving to myself and others it was real in a way.

[SufferingSilently9 in reply to asoullessstatic]

Hiya, I keep a pain diary especially for my bad days and it it decorated with glitter glue etc too.

I do take my naproxen with food - I was 500mg most days before my newest prescribtion due to my jaw grinding and this medication has helped my jaw but doesn't seem to help my stomach right now. I've never had amitriptyline kind of meds. xx

[ilytotoro]

Hi hope you are having a somewhat pain free day today!

sorry to hear about the situation you are in, its horrible when doctors just fob you off with drugs and dont actually try to help find the cause of it! have you ever tried mefenamic acid? I found that to help so much more than narproxen, it also helped to lighten my periods. cocodamol also is an amazing pain killer to take in conjunction with mefenamic acid if you havent already tried it.

if you dont mind me asking where do you get your pain? i get mine mostly on the right side and am now getting a colonoscopy to make sure it isnt anything to do with my bowels as well.

also if you ever are feeling low and need someone to chat to feel free to message me anytime please dont feel like you are all alone in this

[SufferingSilently9 in reply to ilytotoro]

Hiya, thanks for responding. Mefanamic acid did nothing for me unfortunately and I can't take cocodamol because of the codeine anyways and now that I'm on Brevinor I no longer have periods but I still get a lot of pain.

I'm getting new and random pains everyday, most of them are around my right hip, right thigh or my belly button and upper ribs. Today I've got really bad bloating and a very sharp pain in my belly button to the point where my trousers hurt to even do them up whilst sat here in work. I have to wait till end of January for anything further but the longer it goes on the more I'm getting fed up and it feels like the day will never arrive...

The most annoying part for me isn't the taking meds etc its the fact that I've been told for years by my doctors and specialists that they just "can't figure out what's wrong" which just really sucks.