So I’m sat writing this at 11:30 because the pain is just too much to sleep with. My system seems to be a bit messed up , I usually bleed around 8/9 days , lay period it was 22. I was due a week ago and still haven’t come on. However today I have experienced continuous cramping which is very sharp and feels almost as if some little person is squeezing my insides ?? 😂Bare with me ...
So I usually get very low stomach cramps where as this is more central. It’s just very intense. I know some of you poor ladies also get sort of cramps in your legs and back etc , I never did until today and also got like pins and needle feeling in my leg and foot ?
I’m just worried my condition is getting worse. Pain killers aren’t working anymore, heat pads don’t make a difference and I just can’t stop crying !!! Feel useless , and lost and no idea what to do.
Thankyou for all your support as always, Lucy x
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Go to you GP cos they can refer u for an urgent scan and referral to gynea. Also, turn up in a&e with the for for urgent scan from GP. If u don’t push, they won’t do anything
I just been in bed for 8 weeks now. Was in a&e 5 times and after doing all scans they picked up smthg on the MRI. Ur health is always a priority so don't worry about wasting anyone's time. Listen to ur body and ur instincts 💕
Please speak with your doctor as your pain needs to be addressed. The doctor really needs to find out the exact cause of your symptoms. Pain medicine did not help me either so, I elected to stop taking it all together. One of my former doctors wanted to increase the dose but, I refused to be a slave to pain medicine or anything else...
I am not a doctor but, realized that I needed to find relief. The pain caused seclusion, overthinking loss of patience and depression. The doctors made money each time that I stepped into the office and my condition was steadily getting worse. I researched old remedies. I started using 100% pure cold pressed castor oil. I soak a 1×1 inch square piece of gauze in the castor oil and place it partially in my rectum, lady part and belly button every night before going to bed. Castor oil reduces swelling. It's the swelling that causes pain and pressure in the body. I also take a teaspoon of baking soda mixed into a glass of water every morning on an empty stomach and keep my bowels clear. Also, magnesium deficiency can cause cramps. You might want to check that out as well.
Since doing these things, I have little pain. If I forget my routine for a day or two, I start back with horrible pain... Yes indeed sis...it feels like a hundred little people randomly squeezing and tugging on things inside of me!!!😄 There is one, in particular, that likes to squeeze my rectum shut from time to time (my rectum has swollen to the point that I could not have a bowel movement 😂). However, I must say that the castor oil has been a life saver. I feel like I have a future now and feel motivated again! Please check out you tube etc. regarding the benefits of castor oil. I TRULY believe that you will find it amazing that something so simple can do so much. Sending hugs and prayers. Things WILL get better, sis! xoxo 😊
Thankyou so so so much for your reply ! I can’t explain how lonely it can feel sometimes & have people who just don’t understand. The amount of ‘friends’ that have just cut me off this year because I can’t go out to town etc is ridiculous ! So thankyou!!!
You’ve given some really good tips and I’ll defo be looking into that ! I hope that you’re feeling much better in yourself . Xxxx
Sis...I have lost so many connections since being sick that I now know, for sure, those that really care. My eyes were opened in so many ways. My perspective regarding life has changed and I can now accept the fact that we are passing through this life. Even relationships have a time... Letting go of folks that can't see the value of my friendship is much easier now. Being alone and secluded, I got to totally know and appreciate my own value. I even began to enjoy my time alone and started back to doing simple things that i have always enjoyed (oil painting and reading etc.) So, it wasn't a total waste at all. 😊
Now, I am feeling better and able to do things that I haven't been able to do in quite some time including socializing. Those that left me, I forgive them but, I also know not to depend on them. They play a different role in my life. Those that stuck by my side come first in my life. What felt like a curse on my life has been a blessing. I kinda think that all of this had to happen to slow me down and allow me to prioritize things in my life.
I can pretty much guarantee that all you have gone through has made you a stronger lady! I can see this in your writing. 😊 You are going to get better and be able to help so many ladies. People that have never been through this could not begin to understand what this does to the body, mind and spirit. So, don't even frustrate yourself by trying to explain to them. There are plenty in this forum that totally understand. Sometimes, sharing and writing is a relief in itself. You have a lovely spirit! Don't ever change that!!!😀
Thankyou so much ! I can’t tell you how much support I’ve received on this site and your kind words are so appreciated. Sometimes I feel we offer more support on here than the outside world. I saw something the other day that said ‘you don’t get it , until you get it’ and how true is that!
You are a very kind person , thankyou so much for your lovely words xx
Hey Lucy. I know the feeling all too well. Like some other people have said I know it’s frustrating but keep pushing with your GP for referrals to see if they can do anything to assist your pain. It’s such an isolating condition for people who don’t understand, I’ve nearly had full blown arguements with people say ‘it’s just a period’ they have no bloody idea! I once had to explain to a dr that the pain felt like it was ‘wooshing’ from one side to the other, as it was the only way I could describe it! Have you tried any essential oils to help get your body a bit more relaxed when it has the spasms? I’ve found that having some lavender on my pillows can sometimes ease me into a sleep so it distracts me from the pain. I’m no herbalist this is just from what I’ve read so I’ve tried it and seen some results. Really hope you get some relief - the whole endo community feels your pain and are here for you!
Thankyou so much for your reply! I know the frustration , people just don’t get it & it just be hard , there’s so little education around it all! And the DRs, well the amount of times they’ve checked me for STIs and pregnancy when I was a VIRGIN was laughable . But we have the support on here& for that I am thankful. I will defo look into the tips you’ve given me. Thanks again so much and hope you’re feeling better in yourself xx
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