Waiting Game: I saw my gynae today and told... - Endometriosis UK

Endometriosis UK

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Waiting Game

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I saw my gynae today and told him the 3 injections of prostap had stopped the monthly pains from adenomyosis. I signed the paperwork for a hysterectomy and I’m having a total hysterectomy via key hole but may have to be opened up due to me having fibroids and a large uterus. I asked to go on HRT and he’s given me Tibolone until I have my operation. I have a 2-3 month wait for my operation. How long do you have to wait until the hospital sends you a date for your operation?

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AllthatGlitters profile image
AllthatGlitters

Hi I have been told my op will be this year so in total around a 4 month wait. That’s if it is actually in 2018, waiting patiently on my letter. I have Adenomyosis too, can I ask what symptoms you get if you don’t mind?

Hope you don’t have too long to wait x

in reply to AllthatGlitters

Hi

My symptoms were excruciating pain like labour at its worst around the time my period was due. It lasted at the most 2 days. Normal pain killers didn’t stop it, codeine helped but not enough. I ended up on morphine. X

AllthatGlitters profile image
AllthatGlitters in reply to

That’s like me, I could have written that. It’s awful isn’t it x

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