Waiting game ..: Hi ladies, haven't posted... - Endometriosis UK

Endometriosis UK

72,903 members53,260 posts

Waiting game ..

ellis13 profile image
5 Replies

Hi ladies, haven't posted on here for a while now. So I had my surgery back in Feb and was diagnosed with endometriosis after 8 years of fighting and forcing doctors to listen to me.

My follow up appointment was last week but got cancelled to this Wednesday. I'm feeling really nervous as I don't know what to expect for this app. I've had 2 periods since my surgery and the pain has been unbearable, I am now on constant codine for pain relief. Since my surgery I have been soo low and I keep having small anxiety attacks when I'm not with people I'm comfortable with or if I'm not with my other half. I'm also suffering terribly with headaches, is this a symptom of endo?

Also I'm finding certain foods are effecting me and make me very uncomfortable.

I can't wait for my app on Wednesday to mention all this to my gyne. I'm so fed up (still) 😔

Ellis xx

Written by
ellis13 profile image
ellis13
To view profiles and participate in discussions please or .
Read more about...
5 Replies
JeanOsborne profile image
JeanOsborne

Oh Hun I'm sorry to hear your in pain. Was you lap just a diagnostic or did they remove the endo?

ellis13 profile image
ellis13 in reply toJeanOsborne

It was a diagnostic but he removed some whilst I was under. My right ovary was stuck to my bowel too X 

JeanOsborne profile image
JeanOsborne in reply toellis13

Hi Hun, are you with a general gynaecologist or a BSGE specialist? 

ellis13 profile image
ellis13 in reply toJeanOsborne

I'm just with a gynaecologist at my local hospital Hun x

JeanOsborne profile image
JeanOsborne in reply toellis13

Hi Hun have a look on the BSGE website for a specialist centre near you and ask GP for referral to them, they can't refuse. 

Unfortunately general gynaecologists tend to miss endo in places as they only normally look at reproductive organs. So get a second opinion from a endo specialist.

Not what you're looking for?

You may also like...

The waiting

I am so close to giving up :( currently waiting for my 2nd lap after a diagnostic one in August....

The waiting game is killing me...

Hey! So I’m new to this.. need some advice! Quite a long story but please be patient with me. So...
Tamzbrown profile image

Waiting for 2nd Lap

Hiya everyone, haven't posted on here before but feel like I need some support. I've had...
Ebrockersx profile image

Waiting times

Hi ladies , really appreciate you taking the time to read this. I am in fife and have been...
Cherrypie77 profile image

Post Lap No Endo found

Hi everyone, I had my laparoscopy to look for endometriosis on the 5th October. When I woke up, I...

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.