Log in
Endometriosis UK
42,166 members35,748 posts

BSGE surgeons North West/Yorkshire area

I know we can't refer to specific surgeons so if any of you lovely ladies could PM any recommendations/thumbs up of experienced BSGE surgeons in these areas, that would be great. I've been a patient of a well known endo-guru in Yorkshire (Mr T) and am devastated he retired last year and left me hanging (!) I'm in need of some advice re suspected diaphragm endo and nerve pain and have to start my search all over again for a surgeon I can trust. Any feedback would be greatly appreciated as just reading loads of consultant names online isn't getting me very far! thanks everyone x x

8 Replies
oldestnewest

Couldn't recommend my consultant and surgeon enough! My consultant is at pinderfields and my surgeon is at dewsbury xx

1 like
Reply

Thanks Lizzy if you could PM their names that would be fantastic! Thank v much, glad you found some decent consultants x

Reply

After years of gps and gynaecologists not helping me I did my own research and demanded to be referred to pinderfields (which is BSGE) within 4 weeks I got an appointment and 6 weeks after that I had my lap, 12 weeks after the first lap I will be having my excision surgery on 10th September. They've both been great and are very understanding, I will pm you now xx

1 like
Reply

It is such a shame that so many of us have such similar battles to get the treatment we so deserve. It shouldn’t be our sole responsibility should it. I really feel for you having had similar battles myself. I wish u all the very best for your surgery on the 10th. Thanks so much for your replies x

1 like
Reply

I’ve messaged you seconding what lizzy says, but forgot to say pinderfields also have an endo nurse that sees you after surgery and you can contact anytime. I’m nearly a year post excision and she still sends me information in the post about endo and support groups/ information sessions they are setting up through the hospital. She gave me loads of advice on diet and lifestyle to manage/ prevent return of endo after excision which I know a lot of hospitals don’t provide. She has endo herself so is really understanding. Xx

1 like
Reply

Thanks so much, really interesting to hear about the Endo nurse too, that’s such a good idea. While I saw one of the leading surgeons (who’ve just retired) he didn’t have a specific nurse & that aftercare/advice/info/post op support is so crucial. A lot of people don’t even realise Endo can and will return post surgery - my first consultant never told me it was incurable and never told me it was likely to return, which it did very aggressively within six months despite having a six hour op to excise aggressive Endo at my first lap. A year later I was back to square one, perhaps even in a worse state, and that potential outcome was never highlighted to me. To have a nurse who has actually experienced Endo is a huge plus. Thanks so much for your comments, really helpful x x

Reply

Hi Sez73,

I am sorry about your endo-guru retiring. It is so hard to finally find someone good, only to have to start the search all over. I am in a similar situation, as I am moving to W. Yorkshire from USA in the next couple of months.

If you can forward me any of the recommendations for consultants and/or surgeons that you receive, I would really appreciate it.

Thanks, and I hope you get everything sorted quickly!

Reply

I’ll PM you with any names I’ve received so far plus my own researched ones too, will do once I’m home soon. As u say it’s horrid when u finally find someone you trust who does a great job only for them to retire. I’ve had surgery in Sydney and looked worldwide for talented Endo surgeons but need one closer to the uk now that I’m here!

Good luck with your move! X

Reply

You may also like...