Possible Endometriosis?: Hello, I’m 17 and... - Endometriosis UK

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Possible Endometriosis?

Annan1267 profile image
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Hello, I’m 17 and have been in and out of A and E for the past five years with severe period pains. Over the past 3 years, the pain has progressed into pelvic pain every single day, extreme pain during sex, severe period pain and bleeding, irregular bleeding even though I’m on the pill, pain during bowel movements and chronic fatigue. I also have a history of chocolate cysts on both ovaries.

I believe I have endometriosis and am having a laparoscopy on Thursday to find out the cause of my problems.

The doctors believe that it’s not endometriosis as nothing has showed up in MRI or transvaginal scans, but I feel like it couldn’t possibly be anything else!

I’m just wondering if anyone else has had the same experience where nothing has shown up on scans but they actually have been diagnosed after the laparoscopy?

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applebird profile image
applebird

The only way endometriosis can be definitively diagnosed is with laparoscopy, it may not show up on MRI or transvaginal ultrasound.

If you have chocolate cysts you have endometriosis as far as I know women-info.com/en/endometri.... Anyone think anything different shout out?

Does your consultant specialise in endometriosis? - check here bsge.org.uk/endometriosis-c..., or google their name and location (they will probably do private work and often you will see a paragraph or two on their medical background and specialist interests to advertise them or some other article), or just ask your gp or the hospital.

If the consultant isn't a specialist and you have no confidence in them then there may be a chance to switch to another surgeon, though it's a bit late in the day now. If it were me I'd be focusing on preparing for the surgery as it's a lot to go through. endo-resolved.com/laparosco...

Hope everything goes well x

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