I've just been called by the general gynae's secretary to arrange a phone appointment with the gynae tomorrow and I'm panicking.
I've had such a mess with the doctors over the last 4 years since I started getting so ill. My main issue is with debilitating chronic fatigue but I also have chronic back & hip pain and abdominal pain and gastro issues. I've seen gynae before and had a lap 2 years ago which was clear of endo & so I was discharged. I was later referred to orthopaedics due to the back pain. I had an mri which came back with showing severe endo throughout my pelvis. It was just the orthopaedics Dr that told me this & couldn't say much more than its severe and throughout my pelvis. I was referred back to gynae and last month I met with the gynae Dr who was the surgeon that did my original lap. I think he was a little defensive saying that any endo would be new as it wasn't there 2 years ago. He said the mri I had wasn't looking at tissue so they needed another more specific one to plan treatment. He was confusing me by saying 'possible endo' which I asked, is there a possibility I don't have it and he said no. But he still kept saying that. He wouldn't really tell me any specifics. He said the results from the second mri were needed and they would be discussed at the endo specialist clinic which was on 31st July.
So I've now got this phone appointment with the gynae tomorrow to discuss the mri results and the outcome of the meeting and my head is in a spin. I feel I'm going to get told they didn't find anything in the second mri and I don't actually have endo and this past few months has been all for nothing. And I will feel like a fool telling everyone this is what I have and feeling all justified for feeling ill when actually there's nothing wrong with me, I'm just making it all up.
I'm just having a really tough time of it today. My fatigue has been awful this week and my husband, who's my only real support has been awful...working really late and just not being very nice or helpful and getting really defensive and annoyed when I tell him this.
Sorry, I just need to share all this. It's a really tough day.