I've posted a few times since I found out I have stage 4 endo on Fri after 4 years of severe fatigue, gastro issues, back & hip pain. I had a lap 2 years ago that ruled out endo. Was eventually seen by orthopaedics for my back & hip pain and after an mri is told about the endo. The consultant admitted he knew nothing about endo and just literally read out the mri results. It sounded like a horror show in me, it seems like it's everywhere and they couldn't locate my ovaries. So I was left with just this raw info and booked to see my GP hoping for some answers. I went today armed with a million questions... She didn't know of my diagnosis, couldn't access the mri results and seemed to have no real endo knowledge other than the basics. I told her I wanted to get referred to the specialist endometriosis Centre which is really close to me, the nearest city. She's never heard of it and was very keen on on focusing on a gynae referral. She said she wanted to speak to the gynae service to see what they thought and said she'd phone me back in 2 weeks. That means 3 weeks after diagnosis I'll still not have had anyone to talk to me about what this diagnosis actually means for me. I feel so let down.
I'd been made to believe all this time that my symptoms were psychological and now I'm told I have a severe case of endometriosis and I just don't know what I'm supposed to do with this information. I've been off work sick for 7 months, I'm in the process of trying to become bankrupt because my finances have become completely out of control due to me being unable to work. I reduced my hours initially to see if I could manage so my salary has just gradually reduced over the past 2 years ago I basically cannot keep my head above water now. I just feel so overwhelmed by everything. My entire life feels like its unstable.
I honestly don't know what I would've done without this site, its been my only source of support and information.