I have endometriosis, 5 laparoscopic procedures and a hysterectomy haven’t helped I still have daily pain, I did take the combined pill which is the only thing that has ever stopped the pill but I have been told I can not take it as it increases risk of stroke due to suffering migraines with aura !
I have also be told that any synthetic hormone I have taken I am to sensitive to causing severe anxiety.
I feel lost with no hope of treatment to help now I can’t work as it’s just to much I need money so end up going from job to job in the hope one will eventually suit my condition.
I have tried changing my diet but this isn’t helping.
Is there anyone who has any other suggestions ?
Written by
emlouben
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So sorry to hear this, I take it you have tried prostap? or have you been advised against this? I am due to have my fifth laparoscopy at the end of the year and then to be fitted with the coil, have you considered a coil?
So sorry to hear your current situation. Im sure you have tried different pain killers but maybe go back to your gp and see if there are any others? If not then you can ask to be referred to the pain clinic. Alternatively if you are still under a bsge centre you can ask to be referred to the endo pain consultant?
Either way dont lose hope. I know its a rocky road and daily pain is horrendous but keep nagging the drs and you can get to a place of less pain.
I know this from my experience as I have spent the last 6 months off sick from work due to the severity of the pain (now diagnosed with chronic pain due to the endo). I thought I would never get better as not even daily morphine took the pain away however recently I have started to have less pain thanks to an increase in my gabapentin.
I am in exactly the same situation, it is very hard to remain hopeful. I have had 4 laps including excision and hysterectomy (leaving ovaries) 6 mths later with confirmed Adenomyosis, this was last Aug. I am still in pain daily, and cannot work. They have offered me zoladex but I cannot take it because of the sensitivity with my mental health and artificial hormones. I have gone back to keeping a pain diary and with worsening symptoms the last 2 months when I would be due on I am bed bound for 5+ days..... Sending love and strength to you x
Thank you all for your lovely comments, I am due to see the pain management department on 28th and have just started cbt as my anxiety seems to be getting on top of me too 😘
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What do I do next ? :-(
What do I do?
I don't know what to do anymore
Doctors Think I Have Endometriosis But Won't Do Anything?? 
What else can I do??
