Endo of the bowel??

[Jess-Storey]

Hi,

To cut a long story short I was diagnosed with chronic bowel disease 2 years ago, proctitis to be more specific. However after a round of prednisolone in October of 2016 I have been in remission. In my head remission would of surely meant I could get my life back and not be held down by health issues but unfortunately that has not been the case. Despite being in remission I still had issues regarding my bowel especially around the time of my period to the point where I will be sat on the toilet for 20+ minutes (TMI - but diarrhoea) in agonising pain that makes me throw up. I have heavy periods. I can not keep anything in my system for the first 3 days of my period and symptoms start to occur a week before I am due on and when I ovulate. I will try not to make this too long winded but I also suffer from other symptoms that would indicate endo. It has taken months of going back and forth to the GP to finally have someone to say it could possibly be endo.

Back to the reason I am writing this. I recently had a really bad period where the pain was so intense I literally couldn't move off the toilet. My GP had advised I start taking microgynon so I did and then proceeded to have nausea for 4 days, chest pains and diarrhoea. Obviously I was advised to stop taking the pill so now I am having a breakthrough period. I haven't worded this well or gone into too much depth but I am suffering from an awful deep ache at the bottom of my bowel and I was just wondering if anyone who has been diagnosed with endo of the bowel could explain what the pain feels like, the feelings they get, symptoms they have, where the pain is and how they got doctors to listen. I am awful at articulating how pain feels or the feelings I get so it would give me peace of mind to know what others experience.

Thanks

Jess

[Emilybentley]

Hey

I have similar symptoms you are not alone, the bowel issues with Endo are horrid I have regular flare ups witg pain when having a poop to the point I almost pass out, I have no cut out wheat, gluton and dairy and make sure I get 1 solid hour of exercise a day and these things do really help the flare up stay away for longer, I even force myself to the gym at my worst times being the week before my period and it really helps, also consider taking vitamin supplements. Read the book heal endometriosis naturally by Wendy it really changed my life, hope some info helps xx

[Jess-Storey in reply to Emilybentley]

Thank you so much for your reply ☺️ I have recently started excercising more and not only has it helped physically but also mentally too xx