Help!!: I really need some advice. Had my... - Endometriosis UK

Endometriosis UK

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Jaz1233 profile image

I really need some advice.

Had my first daughter at 20. I had a suspected ectopic pregnancy in my right fallopian tube at 22 and had my 2nd daughter at 24.

A year ago my 2nd daughter was 4 weeks old and me and my partner had sex for the first time in months. Hot searing pain down my right side stopped it in its tracks and the next day I went to the doctors. (It felt very similar to my ectopic pregnancy) They immediately began me on a course of antibiotics for pelvic inflammatory disease (I had contracted chlamydia when I was 18 I'm 25 now). When the antibiotics did nothing and the swabs came back clear for PID and any other infection (including sexually transmitted ones) here began endless trips to the hospital always around when I was due to start menstruating.

When my gynaecology appointment finally came through I met with a student doctor who had been to a seminar in endo a week ago. She offered me an injection, an operation, and the mirena coil. The consultant then came in, gave me the most painful examination of my life and sent me out the door with antibiotics. I was absolutely distraught.

Speaking to my mum, we decided I should go ahead with the mirena coil anyway so, with my GPS approval I had it fitted in November 2017.

The first few months were better.But since January I'm back to screaming, crippling pain constantly. It intensifies when I think I'm ovulating (it's hard to know my rhythm since the coil has been fitted) and when I'm on my period. My hormones have gone crazy and I genuinely feel suicidal at times.

I had another appointment to see the consultant in February. It was a different doctor but as soon as he heard I had the mirena coil fitted he discharged me, despite me telling him I was in pain, living on cocodamol and struggling emotionally as well as physically.

I want to give up, I cannot live like this any more. No medical professional listens. As I can't tell him exactly why I am the way I am, I swear my partner thinks it's in my head. There are times I can't pick my youngest daughter up without collapsing with the pain.

Any advice would be greatly appreciated and thank you for reading


1 Reply

Hi Jaz1233,

I'm really sorry to hear that you aren't getting the treatment you need. Did you know that recent research shows that there is now an average of 7.5 years between women first seeing a doctor about their symptoms and receiving a firm diagnosis. Its terrible but please don't give up and keep trying until you get someone who will listen.

You might find these information sheets from the Endometriosis UK website helpful so you can go armed with as much knowledge as you can.

Also this page which talks about Endo and Couples may be helpful for both you and your partner:

I hope this helps.

Take care and let us know how you get on.



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