What sleep?: I just had my second Zoladex... - Endometriosis UK

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What sleep?

Rachel_1666 profile image
6 Replies

I just had my second Zoladex injection on Tuesday 3rd - following my operation beginning of March which removed two endometrioma cysts from my ovaries.

I am just wondering if anyone else has had their sleep affected? I have no problem falling asleep, however waking up in the morning to my alarm -feel like I only just fell asleep a moment ago :/

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Rachel_1666
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6 Replies

Everyone responds differently to drugs I think, especially in the early stages.

I personally find I'm less tired when on Zoladex as my severe endometriosis leaves me totally wiped out.

Sorry I can't help other than to say it helps me enormously - I've had multiple complex surgeries to remove widespread endometriosis (including hysterectomy and ovary removal 14 years ago) and this drug gives me a better quality of life.

I'd stick with it but really up to you.

Good luck!

Rachel_1666 profile image
Rachel_1666 in reply to

Hi..

thank you for your reply.

Definitely agree everyone responds definitely.

I think I could still sleep for days personally, which is odd.

Looking forward to a lay in on Sunday!

May I ask how long you were on the Zoladex for?

And I presume you are now not on it after having that surgery 14 years ago?

HellyLlewelly profile image
HellyLlewelly in reply to

Hi Morgan

I know this post was 7 months ago, do/did you take hrt post hysterectomy with the Zoladex? How are you now?

Im 7 months post hysterectomy and yet paranoid of regrowth as it was in my pelvic cavity and bowel and obviously all my lady organs which are now gone.

Any help is so much appreviated,

Thank you.

Helly. X

HellyLlewelly profile image
HellyLlewelly in reply toHellyLlewelly

Morag sorryx

Sparkyxx9386 profile image
Sparkyxx9386

I seem to of tolerated the drug relatively well without HRT however one side effect I’ve had is not so much waking up tired but waking up during the night or more often way before my alarm goes off which then means Once I’ve been up for a while sometimes I’m exhausted and need to take a nap to top up on what I missed overnight 🙈 having said that it’s definitly tolerable and even with a few other side effects I’ve experienced on and off to me its totally worth it as it’s reaaly really helped my endo pain.

I do find a difference however in how restful my sleep is depending on the routine I follow the night before, if I can have a hot relaxing bath and really wind down before bed that helps, and I try to read a book just before I go to bed rather than TV/IPAD to avoid the blue light and follow a simple face care routine that again helps me wind down and signal my brain it’s bed time xx

Rachel_1666 profile image
Rachel_1666 in reply toSparkyxx9386

Evening .. thank you for your reply.

A nap during the day is always lovely but not always doable which is shame 🙁🙁

I luckily haven’t had any too horrendous long lasting side effects yet so just on Zoladex alone.

Yes always good to have a bed time routine for your brain to get settled as such.

May I ask how long your were on Zoladex for?

Xx

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