What were your symptoms and how were you diagnosed with Endo?

Hello everyone! My name is Sabryna and I’m 22 years old, I started having pelvic pain 6 years ago. Within the past year the pain has progressively gotten worse. Horrible twisting cramps, nausea, bloating, weak immune system, headaches, skin rashes, rapid weight loss, diarrhea. A week before my periods my stomach gets so swollen I can’t even touch it. I’ve had a colonoscopy and endoscopy. Ultrasound of gallbladder. Transvaginal ultrasound to check ovaries. A sensitivity test for interstitial cystitis. Blood tests, All which came back fine! About 3 weeks ago I went to the ER because the pain was so bad I was in tears and could barely breathe. Dr told me he suspects it is endometriosis. He gave me a ct scan to which they only found fluid in the pelvic region. I have an appointment March 16th to discuss surgery options. I’m pretty nervous and I know I’m not crazy. I wake up every morning and take care of my 2 boys. I feel myself changing, this pain is taking over even though I’m fighting through the days!! Pain meds aren’t an option because they come right back up 🤢🤮 I eat a healthy diet, drink nothing but water. I exercise weekly. Has anyone with endometriosis had these symptoms? Is surgery my only option? Is there ANY way to get through the day without pain meds and a heating pad??

[tinkerbell971]

Are you on any forms of contraception like the pill or the coil? They work for some people although others it doesn’t. The only way to be properly diagnosed with endo is through surgery because it’s the only way they can actually have a good look around. Make sure you get referred to An endometriosis specialist otherwise it could be missed. Most of us women are in pain most days and have nothing to really control the pain. For me, I’m in pain every day and look 8 months pregnant from the bloating, tried paracetamol ibuprofen cocodomol and nothing works. Was recently given mefenamic acid which I found didn’t really make a difference. I had surgery in September last year and my pain was back by the end of November. There is no cure for this disease so really it’s trial and error of meds’ etc until you find something that works for you. Hope that helps x