Yesterday I received my copy of the newly released endometriosis book (I think there was a previous post on it so I decided to order) (see pic). I was reading it on the tube yesterday and it was so hard not to burst into tears. So much resonated with me and hearing other people's stories in the book was very comforting with an illness that so few people really understand the impact on pretty much every aspect of daily life. In particular I got emotional reading about endo and partners. I'm in a fairly new relationship of 6 months but moving in with him next month. My symptoms became severe probably a month into the relationship - before then I wasn't experiencing daily pain, only after sex. It's been very draining but my boyfriend has been absolutely fantastic and could not be more supportive. He cooks, runs me baths, attends hosp appts, wakes up in the middle of the night to refill the hot water bottle and put in my suppositories (!! Keeping the romance alive). There are still days where I want to withdraw from him, the fear of being a burden, the impact it has made on our social life and inability to commit to future plans. Ultimately I fear that eventually he will tell me he can't cope looking after me anymore even though he constantly reassures me he is very committed to the relationship. I actually gave him the book to read yesterday and it was so nice to see him digesting it and cementing his understanding of the condition and pointing bits out to me that have been relevant to us. (I would really recommend if you have the book getting your family and loved ones to read).
I was interested in hearing about everyone's stories with regards to your relationships. Have your partners been supportive? How has it affected your relationship on the whole? Have any relationships broken down as a result of the impact of endo? A few stories I read in the book mentioned this - was really heartbreaking to read. And how do you let your partners feel special and appreciated? I often let my partner know verbally how much I appreciate him but it makes me sad that I'm often too tired to treat him to a nice meal out or trip to the cinema etc.
Would love to hear everyone's experiences xxx