Severe endo and IVF

[cryst4l]

Hi Ladies

I have severe stage 4 endo and recto vaginal endo with nodules that are deep where surgeons couldnt even see in my last laparoscopy in July last year. I was advised by my surgeon to go straight to ivf as concieving naturally wont happen due to my abnormal tubes and my age (37). I have completed part 1 of the IVF journey in november last year and froz all 13 embryos that we successfully managed to get. My frozen transfer is in April. I am on gonapeptyl for 3 months (1st injection done). However, I can not help but worry that this is all going to end horribly with my endo being in the way of the embryo implanting successully. Drs tell me not to worry and that as my womb cavity is healthy I should be ok to carry and get pregnant after ivf. I also keep reading stories of ladies with recto vaginal severe endo having failed IFV rounds so just wanted anyone who had gone through this to share your experiences and whether your IVF failed or succeeded when having through this awful disease. I am in so much pain daily, I just want to fight this awful disease. I cant have any more surgery the drs said as next time I will need a hysterectomy joint with colon surgery but after I have a family. I feel like im in limbo here, I have the disease spread in my body, yet I cant habe any more surgery yet doing IVF in the hope that it might work. But will it really?how can it even work? Am I just heading for disaster? Sorry for going on. Thank you for listening. Any advice appreciated, Crystal x

[Beebuzzybee]

You’ve done incredibly well to get 13 little potential human beings this far so no reason to think that one of those at least won’t take. There are many reasons for failure for both fully healthy & endo sufferers alike. Part one very successfully done so take all the positives from that and try your best. Xx

[cryst4l in reply to Beebuzzybee]

Thank you so much. I am trying my best to stay positive. Its such a tough journey. Xx

[angellllll]

Hey there! Hope you're doing good. I believe you shouldn't be this negative about this whole treatment. Being positive is extremely important! One of the keys during the treatment is that you block the negativity and keep your mind busy. Secondly, there are a lot of things you could do to help you out in this process. These include staying hydrated, having a high level of carbohydrates. Eat healthy food and maintain a good healthy life.However, when my aunt went through IVF and she had bilateral endometrioma, and also a rectovaginal nodule. She actually got a surgery to remove the endo first. Although it's about luck, you will have to face the complications. However, if your doctors treat your treatment carefully then you may be able to. I believe just be more positive! I wish you luck! Hope you're able to conceive and become a mother. Otherwise, don't lose hope you've other methods like surrogacy.

[cryst4l]

Thanks for your reply angel. I think because i am going straight for ivf rounds without being treated ( surgeons said its too risky to operate now as it would lead to a hysterectomy) i have to go with it and hope for the best.i know i need to be more positive.

[AJJ123]

Good luck I too have endo. If all works out for you, it gives all us endo ladies hope. Stay strong, if your womb is healthy why wouldn’t you be able to carry? Your being too tough on yourself. Us endo ladies are naturally tough (I believe) because we have had to deal with so much crap emotionally and physically and we still get through it. Keep pushing your just as entitled as anyone else xx

[cryst4l]

Thank you so much ajeff. We are very strong indeed. We will fight this horrible disease and have our much longed for baby/ies. Xx