#Severe Rectal Pain#endometriosis#Pain Killers#Bulky Womb

[cryst4l]

Hi Ladies

I suffer from severe endo and have just undergone my 3rd lap and hysceropy last week. Since feb this year I have had the most awful rectal pains during my periods and for around 3 weeks after. During this timr I can't sit down, drive, and do some normal day to day activities. I take ibuprofen and paracetamol, both of which can often not make much of a difference.

Are there any ladies going through the same thing? and any suggestions on what it could be? my only assumption is that the bulky womb that i have is compressing againgst the bowel but I am not entirely convinced as the pain is so severe for around 3 weeks, then stops for around a week then kicks off at the next cycle.

[Starry]

I had rectal and back pain. It was caused by adhesions distorting my bowel out of place and a 3 cm nodule in the recto vaginal septum. Have you had a sigmoidoscopy to eliminate bowel endo?

[cryst4l in reply to Starry]

I havent had that no, dr just said he couldnt find a nodule on the rectal vaginal area, he thinks its my large womb pushing against the bowel, but its horrendous pain and for 3 whole wks. He said to go away and try for kids then to come back for bowel surgery and a hysterectomy, until then he cant get to the deeper endo.

[Starry in reply to cryst4l]

Its possible. My problem put pressure on my bladder causing issues which is how I got diagnosed.

Perhaps I only needed the sigmoid cos the lump was found.

Do you bleed from your bowel?

Are you being seen in a BSGE Endo specialist centre?

[cryst4l in reply to Starry]

I was with a specialist endo centre in london and before that, twice with nhs for the ops. i dont get rectal bleeding, its just the pain for me. They say they can not find a nodule causing the pain. you feel to chop the lower half off at times!

[Starry]

Big hugs XXX I hope you can find ways to tackle the pain xxx

[discobec]

I have the same thing. My periods are fine generally, but around day 4/5 this awful rectal pain kicks in as well as right sided abdomen and thigh pain. It stops almost completely once I've ovulated. This wouldn't be too bad but my cycles are all over the place at the mo and sometimes I'm ovulating late and occasionally not at all, so the pain sticks around.

I had excision in November last year and my consultant now suspects I have a large cyst on my right ovary which is causing the pain. I'm going for a scan this week to find out.

Hope you're able to get some relief. Acupuncture has helped me a little. X

[cryst4l in reply to discobec]

Aw sorry to hear you are going through the same thing, its awful right?! I am regular with my periods since 11 yrs old but sufferee from endo since 2006 with 3 laps done, only since this yr i have had this severe rectal pain, but like you, it suddenly stops when I ovulate. because we want to try for baby natural and ivf, I need to stop taking such strong meds like ibuprofen and co codemol but its easier said than done when in this position. I am going to try accupuncture once my stitches from op have healed, praying that it works a little. what do you do to relieve the pain? good luck with the scan x

[discobec]

I take painkillers (mainly paracetamol, but sometimes cocodamol is the only thing that works), hot baths and a hot water bottle give me some relief too. Not much fun in the summer months though!

I also do castor oil packs and take a tonne of supplements - 350mg magnesium, turmeric with black pepper, omega 3 fish oil, serrapeptase... That's as well as TTC supplements! I'm amazed I don't rattle! X

[Stellauk]

I had similar pain before. I found naproxen 500mg and paracetamol 1000mg together works well and take the edge off.

Can you be referred to the chronic pain clinic if there is no further surgical options? Maybe worth raising the issue.

[cryst4l in reply to Stellauk]

I have been told to try not take other pain killers if we are to try and concieve but paracetemol is no good on its own.

I havent tried thechronic pain clinic, what do they do? surgeon just said they can't do anything more until we try for kids and to put up with the pain. but god knows if and when we concieve so i am trying my best to mentally prepare in my mind, this awful journey we are heading towards.

[Stellauk in reply to cryst4l]

Oh, poor you, really in a difficult spot. Do you have an electric heat pad? I found it can help with the pain and relax the muscle. Chronic pain clinic is part of BSGE centre. However, they may not able to do much due to your situation.

[cryst4l]

wherr can I get castor oil packs? do you find the suppliments to work throughtout the pain? and do you buy from health shops?

main thing is you are managing the pain - well done x

[Mariec7 in reply to cryst4l]

Buy the castor oli either in Holland and Barratt or Amazon and usually you should use a wool cloth to soak the oil in. I have a hot water bottle but I use a heating pad which I plug in and it's a good size. It has 4/5 temperature settings and switches itself off after 2 hours.

[Mariec7]

Hi cryst4l sorry to hear about what you are going through. I have been there. Do you know if you have adenomyosis? I had an MRI done a year after open surgery for endo and removal of large fibroid. Adhesions from the operation (which is a risk of surgery) were found on the back uterine wall in the muscle. Adenomyosis causes contraction pains I would imagine similar to child birth. Because my adenomyosis is round the back that's where I feel the pains. I have a bulky womb due to IVF. Some of the IVF drugs used can aggravate any pre-existing gynae problems. My womb usually sticks out a few days before my period-it looks strange, I also have another large fibroid which grew in a year! This fibroid also pushes on my womb. It might sound small but I just wrote a post for someone else about diet and vitamin supplements. These things are transforming my life and I don't say that lightly. I don't exercise really and I certainly don't starve myself. Doctors do not talk enough about key dietary changes and adding vitamins like D3, Vit C, B vitamins, Vit E, magnesium etc . I take them all separately with food as oppose to taking 1 vitamin tablet combining all of them. I do take them everyday consistently, i take them in the morning and at night before bed (risk of waking up in the night to go to the loo is the only issue). I do not eat meat, gluten, soya or dairy. Gluten is a key thing to cut out for women with endo. When I had the MRI done in Jan 2017 I was in a bad way. I paid to see one of the best endo consultants in the UK and I travelled far to see him. I was in tears in the appointment and in complete despair. I was advised a hysterectomy at the time but after reading posts on here I know a hysterectomy isn't a solution. I also would like to have children. I took the vitamin advise off a miscarriage consultant who does think outside the box. I don't want to speak too soon but I wish I had started taking vitamins sooner. Adenomyosis has been a big problem for me, it is hard to diagnose using ultra sound alone. MRI is the best option but it set me back £400. Atleast I know now exactly whats going on with my womb and the surrounding area and when I see consultants for IVF etc I have a results in black and white that they can't question. Hopefully I am on a better journey now leading up to my FET xx Good luck and big hugs xxx

[Bdgjdjd]

I have endometriosis on my rectal and anus and my bladder I cannot pee or doing number 2 I cannot set or even walk