Help please - pain: Diagnosed with endo via... - Endometriosis UK

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Help please - pain

Peren profile image
6 Replies

Diagnosed with endo via lap last September. Put on course of zoladex. Not had a pain free day since lap and developed terrible stabbing pain in left pelvis and pain sometimes shoots down leg into shin bone.

Been to gynaecologist today and they said pain can’t be endo.

Can anyone help?

Being referred for scan and pain clinic.

Thanks

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Peren profile image
Peren
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6 Replies
Tia1991 profile image
Tia1991

Hi there i was on the zoladex injections for 11 months and that helped me but they have stopped giving it me now and my pain has come back they are now looking at hysterectomy for me. I have the same pain as you and mine is endo so all i can suggest is you get a second opinion and ive got my fingers crossed for you i understand how horrible the pain is. Take care many hugs xx

Peren profile image
Peren in reply toTia1991

Thank you. I’m sorry you have to have hysterectomy. Hope all goes well.

Ugne profile image
Ugne

Hi Peren,

Sorry to hear you haven't had a pain free day. Have you been seen by a BSGE accredited specialist? You can find the nearest center here: bsge.org.uk/centre

Hope you feel better soon,

Ugne

Peren profile image
Peren in reply toUgne

I don’t think I have. Can I choose to go to see them? I’m being referred to a pain clinic?

Ugne profile image
Ugne in reply toPeren

Yes you can ask your GP to refer you to an endo specialist at a BSGE centre. Hope this helps x

Peren profile image
Peren in reply toUgne

Ah! Thank you! Xx

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