Endometriosis UK
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In agony

Does anyone have any remedies for period cramps when heat pads and strong painkillers aren’t helping at all.

The pain has gone into my back and blood when I go toilet (sorry tmi) but that’s not happened before

I’m being dragged shopping by my parents when I can barely walk 😫

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I am sorry you’re in such pain- I too dread my periods and you’re definitely not alone.

If I was you I’d phone 111 for advice and they might be able to get you an appointment with an out of hours dr- I had to resort to doing this once and I found the the out of hours dr much better than my disinterested GP. Hopefully the out of hours will be able to give you something to relieve the pain.

Right now you need to put your health needs first and rest xoxo

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My parents won’t let me rest and are making me go shopping. I feel like crying, it hurts that much xx

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Maybe they feel it will make you feel better? But I know for me bed is the only place to be.

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Oh don’t go shopping hun. Stay in bed. Unfortunately I only find hot water bottles and ibuprofen give a little relief I otherwise have to grin and bare it as I’m trying to get pregnant so I’ve had to come off the pill.

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Hot water bottles and strong codeine aren’t helping at all. The pain has spread into my hips as well

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you can take paracetamol and ibuprofen as well if you have them. A hot bath might help. Otherwise go to A&E.

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I’m going to try a hot bath now and my parents won’t let me go A&E

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You are 18. It is not their decision. Call an ambulance if you can't get yourself there.

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What would they do at A&E

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Get your pain under control and rule out anything serious. Make a note on your records of the severity of your pain which will help you in future. If things are as bad as you say, they will help you.

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A bath isn’t helping. I’m still waiting for a lap as my gynae suspects endometriosis but the pain has gotten worse this month and the nausea

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If you can't manage the pain, go to a&e. It doesn't matter whether you have had surgery or not.

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Buscopan is the only thing that helped me ... xx

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I took 2 codeine last night and it didn't do anything but combined with ibuprofen today it has helped. Take care.

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Oh Hun, I came on last night and was crying in bed till about 3am, couldn’t sleep or get the pain to stop etc. My other half really didn’t know what to do bless him. So I know how you feel, please don’t let your parents order you about your 18 now and I know they are still your parents but you know what’s best for your body! Stay home in bed if you need to that’s where I’m at today, I had to phone into work 😩 sending a ton of love your way hunny ❤️

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I’m in bed watching Disney movies haha. I can’t eat because of the nausea. My boyfriend lives 2 hours away from me 😫 hope you feel better soon ❤️

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Thankyou! I’ve just been and had the coil fitted! Fingers crossed it helps!🤞🏻 Aw that’s hard hunny makes me so much more thankful I live with my other half 😭 xx

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Yeah tbf i wonder how he’d react when I’m at my worse though during my period and all the pain and sickness that comes with it

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Yeah my other half is becoming better, he was great at the start of our relationship and then I was on the injection for three years so didn’t have them for so long, he kind of forgot how bad they were haha so did I to be fair😂😩

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Hi Princessk. If I was you I'd call nhs 111. What pain meds do you have? They may be able to give you something stronger.

As for your parents, I've seen your other posts about how they seem to not believe the pain you're in. I was 18 and living at home when endo started. My dad would stand at the end of my bed and say there's nothing wrong with you as 10 local gps failed to diagnose me. Thankfully I had my mum who was fantastic but it hurts like hell when someone can see you're in agony and they just don't believe you. I don't know where you are but have you looked on Endo UK's site for local Facebook support groups? They run in person support groups but if you can't get to them you still have support online from people who live nearer to you. I've found it a god send. As you're 18 now you are in charge as far as anything medical goes. In an ideal world you'd be living with parents who are supportive through this but as you're not do take charge and reach out to others locally. If there is a group nearby that you could attend on better days or you connect with someone you could meet for a cuppa on low pain days I bet it would make you feel a lot more supported psychologically at least. Take care xx

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Yeah thank you so much, it’s hard as my bf lives far away so I can’t even go and see him on days I’m feel low so rely on phone calls or texting.

I’m just scared that I go for this lap and nothing is found as then I’ll still be in agony and my parents calling me a liar and using it to get out of doing stuff xx

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Are you able to work therefore move out? Or are you studying/studying possibly on hold due to all this? Yeah, I'm 42 now and 18 when it all started. Totally isolated in a little village miles away from friends at the time. Thank god there's online support like this these days! I'd definitely look on endo Uk site to see if there's a local support group xx

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I’m not able to move out yet and I’ve had this pain since I first started at 11. It’s just got gradually worse each month xx

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Are you on any contraception? My periods were horrendous and I was told by my gynae to take 3 months pill back to back because at least then I’m only having 4 periods a year instead of 12 and also the pain has reduced quite a lot when I do have my period - it’s still there but only lasts a day or so now instead of a week x

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I’ve tried a lot of contraception and no effect on my pain or period

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How long were you on the pill for? I know it doesn’t work with everyone but maybe you just needed longer on it x

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Like 6 months xx

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Would you not go back on it to try for longer? I’ve been on it for 6 years and only the past year or so since I’ve been taking it back to back has it made a difference x

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I get really bad side effects with every one I’ve tried so far xx

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Hi, I was 11 when my symptoms started also I’m now 32 with 3 children, I was diagnosed at 21 iv been on numerous types of pill, the coil, menopause injections sadly none of them helped I found that my 1st 2 pregnancy’s settled my endo my last pregnancy 2 years ago caused endo to rear its ugly head and I have had pain everyday since had my 4th lap dec 16 where they found my endo was so severe over my bowel bladder pod uterine artery and blood vessels ovaries and uterus I was a very difficult case they had to close me without doing anything I’m now under an endo specialist in Edinburgh I’m awaiting my date for hysterectomy and open surgery on my bladder as it’s stuck to my stomach wall, I am on cocodomol daily which only ever takes the edge of my pain when it’s a good day I’m also on oxycodone when it’s a bad day but even that doesn’t take the pain away completely, I get pain in my back hips groin legs pelvis, today is a bad day iv had my pills and morphine I haven’t had the chance to sit down all day and take it easy I still have 3 young kids to look after and a house and hubby. Hope u get the answer u need, do u have a date for lap? X

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I’m sorry to hear your going through this.

I have to wait to see another consultant on the nhs who can apparently decide not to put me on the waiting list for a lap. So I’m still waiting for one but honestly I’m in so much pain and struggling to sleep tonight because of it xx

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I really feel for u, the not knowing is awful, bcos it is a disease that can't be seen people are quick to say their part, u are in too much pain for it to be nothing, there is something going on that's causing ur pain, fight for ur diagnosis, have ur parents ever read up on endo? Might make them a little more sympathetic if they were able to read little more about it xx

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My parents are the most unsympathetic people ever, they won’t ask if I’m doing okay or anything. And if I say I’m in pain, they tell me to stop moaning xx

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Aw that's not right, my mum and dad were always the first 1s to say it's time a & e or make me appt telling me to stay of work, having someone in your corner helping u fight helps make this a little more easier, I wld give anything to still have mum in my corner but sadly we lost her 6 months ago, still have my dad and my sister's and hubby but mums make u feel better, that's their job I know when kids are unwell I do everyhing I can to make them feel better, hope once u get it answers theyl understand better xx

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hate to say it but A&E does help, they rush you through because of abdominal pains so you aren’t there forever, longest I’ve been waiting is 45 minutes, I’ve been several times and they give you tramadol or oramorph, rule out anything that could be exasperating your pain e.g if the pains on your right side they rule out appendicitis and urine infections which can make the pain so much worse, they also make notes on your records that go back to your gp, found that my gps took me a lot more seriously to keep me out of A&E I.e giving me oramorph on prescription, I know covering it up with drugs won’t help long term but short term it helps,

Get your mum to sit next to you if you phone 111 perhaps? they won’t send you to A&E or an out of hours doctor unless they believe you need it

Have to ask, have you tried utovlan (spelling?) it’s a synthetic hormone that resembles your own bodies hormones? Really don’t want to keep suggesting pills as I know how badly you get on with them, but had to bring it up incase, hope you start feeling better soon, always here if you need someone to talk to xx

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