Endometriosis UK
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Second surgery and so fed yp

2 days ago I had my second laparoscopy which was delayed and was very frustrating and they found nothing at all. I spent all day in a waiting room to have a short procedure to wake up to a doctor saying we found nothing go home.

The first procedure 2 years ago they found a slight ending and got rid of it

This is very upsetting as I know after I get over my opp I will still have the on going pain that I’ve been having - lower ab pain, sickness, exhaustion, and the doctor is referring me to the pain guy which basically means we don’t know what’s up but we will be giving you medicine for the rest of your life. Like thanks, so helpful. I’m 23 and it’s ruining my life. Anyone else have this similar problem?

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I’m in a somewhat similar situation.

I had a small patch of endo removed in August. I’ve had lower right abdominal pain and just recently upper right as well. Turned out my gallbladder was bad and had that taken out.

Still having the right lower pain so I’m going in for another exploratory surgery with two surgeons as they “don’t know what’s wrong” and they’ve been giving me all kinds of meds to try for ibs and pain medicine etc (which the ibs meds do NOTHING..) had a clear colonoscopy and CT scans. I’m convinced it’s my appendix as I had the class symptoms of pain, fever, high WBC, nausea, diarrhea. My gynecologist thinks it’s that too.

If I wake up from my 3rd surgery of the year with them telling me they found nothing I don’t know what I’m going to do...

I’ve been brushed off by so many ER and hospital doctors this past month I’m glad I’m at least getting checked again.. it is frustrating when they don’t know what’s going on.

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It’s horrid. I had my appendix taken out a year ago. I just want to know what’s wrong. I hope they find they what’s wrong with you

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Hi

I feel exactly the same as you I had my laparoscopy on Oct 2nd this year after 10 years of being in pain. They removed endo but I still have the constant excruciating pain, feeling sick or being sick, tiredness & not being able to have a good night sleep with out being woke up by the pain. I’m 24 & I feel 90 I can bearly walk or get comfortable sitting up or laying down because of the pain & reflux. I didn’t get to see my surgeon after I had the operation because he had an a emergency at another hospital & I got to came home the same day I had the surgery but I was told by his assistant that he would see me in a year! My life has been destroyed by the pain I can’t go out with my friends or get a job because I never no how I’m going to feel from day to day. It’s hard to talk to normal people about how I feel because they will never fully understand how I feel having to live like this I should be out enjoying myself instead I have to stay at home because I can’t move because of the pain. I went to a pain management person & they told me there was nothing they can do because there’s no magic pill or solution so hopefully yours is better than mine, also I’m on about 18 tablets a day for this pain & they don’t help me but when I tell the doc that I end up on more. They just seem to not give a shit about how it affects us & I don’t think they have a clue about how hard it is to deal with something that is destroying your life & they don’t giving much help, I think you have to go through this pain to fully understand how it effects a persons life everyday. If you ever need to talk to someone you can message me x

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I’m so sorry to hear you’ve had to put up with it for so long. I’m just so fed up and it’s putting strain on my relationship because like you said no one will really understand till they go through it.

It’s worrying that no one knows a solution when so many people are suffering but I wonder if it is endo if they havent found anything at all

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