Endometriosis UK
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Excruciating period pain

Hi I am new to the forum. I have suffered from painful periods all my life. I am 48 now! I had some relief whilst I was on the pill. However I had to stop taking it due to medical reasons! For the past 10 years or so I have been experiencing severe pain on the first or second day of my period this is especially the case if my period happens to be late! I start to burn up and break out into a sweat. I am stuck on the toilet with sickness and diarrhoea whilst almost passing out. Even though I feel that I need to go to hospital with the pain I would be to Ill to get there! This severe pain only usually lasts a couple of hours before reverting back to more manageable pain. I have been to the doctor on two occasions now only to be sent for an ultrasound which is showing that everything is fine! Does this sound as though it could be endometriosis? Has anyone else experienced this and what was the outcome? Any input would be greatly appreciated. Thank you for taking the time to read.

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I too suffered very heavy painful periods for many years. When it got to the point where it was so painful I could barely walk I went to my GP. As I was bleeding between periods and my GP was unable to do a smear test as there was too much blood (not on a period) and it was too painful i was fast tracked for an appointment with gynaecology at my local hospital. To cut a long story short he sent me for a scan which showed fibroids but nothing else. I am fortunate that I had free BUPA cover through my employer so switched to his private clinic. I was also experiencing bladder issues, wanting to go to the toilet all the time. Eventually diagnosed with Interstitial Cystitis after 5 months, once that was under control he recommended a laparoscopy and hysteroscopy.

Lap found endo which he removed, he was unable to do a hysteroscopy due to a blockage in the neck of my womb. He thought it was a fibroid and said I needed a hysterectomy. I was 47 at the time. After consideration I went to a private BSGE centre for a diagnostic lap and hysteroscopy. Turns out I had a polyp blocking the neck of my which was removed, also had adenomyosis, multiple fibroids as well as endo on everything. So at the beginning of this year I h

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Sorry, PC froze up... I had a hysterectomy, retaining ovaries as well as radical excision of endo, which took 7.5 hours. Post op I was told that one of the fibroids had detached and implanted in the peritoneum (very rare) and had started to grow, also my left fallopian tube had been blocked. Sorry for the long reply but I would say that they have no idea what is going on inside your body until they do a laparoscopy. I had never heard of endo before I was diagnosed but I had so much else wrong once I had proper investigations, so keep pushing and don't take no for an answer.

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