Anyone here taking Qlaira for endometriosis?

[Ecb20201298]

Anyone here taking Qlaira for endometriosis?

[eew_notts]

Not anymore but I was! How are you getting on with it?

[Ecb20201298 in reply to eew_notts]

I haven’t tried it! I was reading about it and it says it is good for people who have endometriosis!! I take it you didn’t like it if you aren’t on it........,

[eew_notts in reply to Ecb20201298]

I’ve never got on well with synthetic hormones but was put on Qlaira and reassured that it would be a better match than usual... it was a very, very bad match. My hair started falling out dramatically, I had the most horrendous palpitations and panic attacks, my skin was sore and spotty.... I ended up at the out of hours doctors because my palpitations were so terrible. I stopped taking it and felt considerably better within a week. But of course this is just my unique experience! I was eventually diagnosed with a significant intolerance to synthetic progesterones xx

[Ecb20201298 in reply to eew_notts]

How do you manage your endo now then?

[eew_notts in reply to Ecb20201298]

I had a laparoscopy and ablation which helped a bit but then thing got worse and I tried acupuncture out of desperation. That made a massive difference. I have no idea how or why but it’s changed my life. Now I have acupuncture once every 3-4 months and use tranexamic and mefenamic acid if I need it.

[Ecb20201298]

Have you been offered any hormonal treatments such as contraceptive pills/ the coil?

[eew_notts in reply to Ecb20201298]

I’ve been eight or nine different types of contraceptive pills, the implant, the depo provera injection and the mirena coil. Out of them all, the depo provera injection was the best; all of the others caused a varying degree of side effects, some very bad like the qlaira pill and the mirena coil. My response to synthetic hormones became so severely negative that I now have a permanent note on my medical records that I should not be treated with synthetic hormones, particularly progestins. That’s why I tried acupuncture after my surgery, a last resort really and I was very surprised when I found it gave me some significant relief 😊