Could I have been treated better? - Endometriosis UK

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Could I have been treated better?

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Ok so I'm not going to name hospital names, but I had my lap on Friday and was left a little disheartened by it all. The staff were nice but none of them really seemed to know what they were doing. I wasn't even told what they'd found before I was discharged, and they didn't even check I'd done a wee (I've since found that it's been incredibly painful to go and the bladder spasms have been horrific). I was told I could go home while I was still lying in bed looking pasty after not having moved once, and wasn't even told about the medication I could take when I got home.

A nurse came in and started to explain what was wrong, but they left and said the surgeon would explain, so when a second nurse said they found no endo and left it there, I asked to speak to the first nurse (who I knew by name) and none of them had any idea she existed. I was told multiple times they wouldn't let me use a bedpan and I had to walk to the toilet yet none of them came with me or even offered help, and when I asked for a sandwich that wasn't egg you'd have literally thought I'd just asked to punch them in the face.

On my way out, none of them even said bye to me or acknowledged that I was leaving. I wouldn't say I feel let down by it, just feel that I was literally being kicked out of the hospital before I was ready and before anyone could tell me what was going on. I know nothing about my stitches or if and when to see a GP or even when I'll hear from the surgeon what went on, should i keep my hopes up of them finding something until I hear back? I've been necking ibuprofen and paracetamol and still in a bit of pain from wind and bladder spasms but hopefully on the mend, tho no idea what to do next!

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5 Replies
Buisquits profile image
Buisquits

I’m sorry to hear you had a bad experience with the hospital.

I wasn’t told much either at first, until the surgeon came and explained everything . I think they came too early as I was on morphine and oxygen and just accepted everything. My partner said later that he knew I was off with the fairies because I didn’t cry or question anything.

The nurse told me about stitches, don’t touch, take the bandage of after 3 days. Eat paracetamol. Go for a wee. Nobody helps as they need to see you moving independently.

I recon they have clear description of what we should be like after the surgery and they do what they’ve been told. They want you back to normal as soon as you can even UID we think it’s too early.

How are you feeling? Do you move around a lot?

in reply to Buisquits

Trying to move as much as possible, I still can't really see an last night was agony but now the wind has shifted I'm feeling better x

Rosie1991 profile image
Rosie1991

Hi Kate,

I’m so sorry you had such a bad experience in the hospital. You could have deffo been treated better. When you are feeling well, it might be worth speaking to the patient advice and liaison service (PALS) and make a complaint. Going through a procedure is scary and emotional which is something we all know first hand on here and those members of staff do not sound very helpful or caring. I hope you recover well and if you are concerned about your recovery, maybe book an appointment with your GP xxx

Bethleah profile image
Bethleah

Hi I’d write everything down so you don’t forget the talk to pals. The next woman may have a similar experience to you. It’s not good enough. There seems less and less care and compassion in the nhs. At all levels.. x

So sorry you were treated badly- I had a silimar experience a few years and looking back I wish I had complained. And mine was a private hospital😬 my surgery this year at my local NHS hospital was so much better- I couldn't have asked for better treatment- I wish I went there a few years to have my surgery.

I would definitely complain to PALS - you might save another lady going through that.

Contact your GP-they should your discharge notes and will be able to tell what's what. Also your gp will be able to deal with any medical issues since the surgery- and make you more comfortable. And provide you with a sick note.

I had some cramping after my lap, ( endo was found n treated) and I had terrible pain in my shoulders- don't be alarmed by that as the gas affects the diaphragm.

My stitches were supposed to be dissolvable- but the nurse at my drs had to remove them- again your gp will be able to advise you on that. If they look red, weepy and smelly - go straight to the drs.

Good luck and hope you recover soon- make sure you don't over do it xoxo

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