Hormone treatments

[rach890]

Hi All,

I want to get more of an idea of what everyone else has been put on for hormone treatment and if its worked for them?

Bit of a back story- I have had surgery back in Feb and was then put on a combined pill which gave me considerable pain daily I then got moved onto a progestogen pill (Provera) and it made my pain 10x worse so a couple of months ago I was taken off everything and a meeting with the gyno was booked in, I have had next to no pain since coming off all pills other then the normal crippling pain around my period and ovulation.

As my Gyno appointment is this Thursday I want to go prepared encase he suggests going back to hormone treatment.

Thank you, Rachael x

[Hidden]

Mirena - I bled constantly for 8 weeks so it was taken out because I was anaemic and they couldn't get my iron levels up.

Decapeptyl + tibolone - still had periods. It was abandoned after 5 months when I had a massive pain flare and ended up in A&E

Norethisterone - I was only on this for a few weeks. A&E doc gave me it when the decapeptyl failed to try and stop the bleeding, then my gynae took me off it. I don't remember it being very pleasant.

Cerazette - was on this for 5 months. Bled all time. Useless.

Prostap (with no HRT addback). Had this for 9 weeks prior to surgery. It stopped the bleeding but not the pain.

Basically nothing helped but hysterectomy and excision, but I had large lesions and my disease was severe. I got some reduction in pain with some of the treatments, but none of them helped in the longer term. They don't work for everyone.

Remember the consultants are there to help us, not to tell us what to do. It's a joint effort. You are allowed to say no and to ask to see someone else if you don't feel your consultant is on your side. Treating endo is all about improving our quality of life, and if a particular treatment doesn't do that, there is no point having it. x

[rach890 in reply to Hidden]

Thank you. I will see what they say but just want to make an informed decision. I know everybody is different and reacts differently x