Endo everyday: Hi guys !! I was just... - Endometriosis UK

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Endo everyday

Fooofs91 profile image
9 Replies

Hi guys !!

I was just wondering am I the only one with pain for like 20 days during ovulation and then absolutely pain free during my periods? I really feel alone in this cycle becuase I hear people talking about their pain being during their periods ? I feel like a 90+ year old at the age of 26 anyone else?

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Fooofs91
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Jenjen87 profile image
Jenjen87

Hey lovely, I had pain throughout the month, before I got diagnosed I was bed ridden for two weeks with pain not just in my abdomen but throughout my body. Also the 90 year old feeling too, someone asked if I as ok at work and I said no, I feel like my body is giving up inside and I’m carrying an 18 stone man ok my back with me everyday, it was tiring. You’re not alone Hun, stay strong 😘.xxx

Fooofs91 profile image
Fooofs91 in reply toJenjen87

Thank you for your reply jenjen!! It’s nice to know that I am not alone makes it so much worse and I feel you I have pain everywhere making life so difficult , I have already had my surgery is it still normal to feel this way? 3 months after surgery. I haven’t started any birth control yet I just decided I wanted to wait and see first if my pain is gone post surgery but I’m still not in luck . XxxxX

Jenjen87 profile image
Jenjen87 in reply toFooofs91

It might be worth raising to your doctor Hun, with managing the symptoms etc.

I’m 9 days after lap today and it’s be a rough few days with tiredness and some pain but personally that’s my own fault because my emotions are sky high but that’s ok, I’m expecting that because I’m an emotional person 😂😊. And I still cannot poop, without laxatives. So again trying to remain positive and know it will be better soon just recovery mode 😊.

After my waffling up there I did have something to mention about managing the endo😊, what I wanted to say was I had the Mirena coil put in as he said if you have endo we could put the coil in, I said yes for sure. Before speaking to him I was apprehensive. I wanted to be natural.

Before saying yes though I got two Doctors opinions on the coil. I did have reassurance that the mirena coil will only release progesterone into the area it is placed in rather than sending the hormones around your body so the side effects are lessened. If that makes sense? This manages the endo too. Get you doctor to confirm what I have said for sure😘.

I had the copper coil for 4 years (not for managing endo I just wanted it as I’m forgetful with tablets) so for me the mirena was fine as I had one before and knew what to expect to an extent, just not the way I would react. I know that the mirena will affect my moods slightly, periods, intermittent bleeding etc but for me endo caused my life hell so this cannot be worse than what i went through anyway, if that makes sense 😊 and if it is then it’s sooooooooo easy to have removed. Trust me, if you don’t like it, it’s irreversible quickly 😊.

I hope that helps lovely.xxxx

Fooofs91 profile image
Fooofs91 in reply toJenjen87

You are literally the sweetest person ever!!! You have given me so much information not to mention hope in this matter 😂 I really have had days where I’ve wanted to rip out my pelvis I’m just praying this is all healing pain otherwise yes I will try the mirena coil too , and follow this pain up with my doctor thank you so much for your help babe and I hope you recover as quick as possible pain free :) xxxx lots of love

Jenjen87 profile image
Jenjen87

😘😘.

I’m glad it gave you hope, positivity is the one and if it does help us then it will officially be my new best friend 😂.

It could still be healing pain beaut, I hope it goes soon for you.

People do not understand the actual pain involved so stay strong 😘.xx

Thank you for your well wishes too lovely. Made me smile on a Monday morning. Lots of love and hugs back😊.xxx

Fooofs91 profile image
Fooofs91 in reply toJenjen87

Thank you so much hun you are literally amazing it’s so difficult being recently diagnosed but like you said positivity is key I literally feel so much better thanks to you and I haven’t felt like this in a long while becuase no one understands thanks again 😘😘😘😘😘😘😘😘 I’m hopeful for us both xxxxx

Jenjen87 profile image
Jenjen87 in reply toFooofs91

It is, it’s a whole new world. We’ve loved a certain lifestyle and now we need to figure it a new one, it might not be the one we had but we can sure as hell make it a bloody good one going forward😘😊.

This is amazing❤️. Any day that you get low or struggling with anything message me.

Me too! We will get through this ❤️❤️❤️!xxxxxxxxx

Fooofs91 profile image
Fooofs91 in reply toJenjen87

Same for you my babe anytime you need someone to talk to I am here ❤️❤️❤️❤️❤️

Jenjen87 profile image
Jenjen87 in reply toFooofs91

😘😘.xxx

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