HI, this is my first post, and I would like to share my story with ya'll. I will try to keep this short, but I can go on and on!!! Last year I had a partial hysterectomy, I have not had a period since 2005, i had part of my lining taken out due to the fact that I was diagnosed with endo. So as you can see I've had to deal with this for years, finally found another great doctor, and he understood my symptoms, so I elected to have the partial, in hopes it would solve the problem...wrong!!!
Fast forward 4 months, i had a pain so bad, I thought i was dying(not really, that's how bad the pain was), anyways, landed inthe hospital for 3 days, due to rupetered cyst, blood had filled my stomache cavity, it was not a good time, the Dr's were not concerned with that at the time, I was having other issues as well, ( ended up with a spleen removal). Fast forward again to January 2017, I was have excruitating pain on my left side, couldn't walk, sit or even lay down. Had a lap done in February, couldn't find anything, ended back in the hospital for 6 days, due to a hematoma..yep that lap caused a grapefruit sized hematoma on the left side, still no relief for 5 months.
Finally went back to my gyno, had a ultrasound done, and boom there it was..ENDROMETREOSIS!!! ( it snuck back in). Dr. said I can fix you, you will feel so much better!!! I was super excited, Yes, I could finally get my life back, be "NORMAL" for once, enjoy life again!!!! So, I just recently had my surgery, it's been 3 weeks, I had my follow up, post-op, I ended up removing my ovaries and tubes, and I had so, so, so much endo, that my Dr. was shocked!! It had attached itself to my bowels, stomache lining and other places it should not have been. My Dr. said he had not seen Endo that severe in over 10 years. He also, informed me, it can come back, and it can attack/attach to other places, he's seen it happen!!!
So, here I am at 47, and I'm in a class by itself, I fall in that 20% catergory, that this EVIL Disease, will rear its ugly head sometime in the future, I always said I was wired wrong, or put together wrong..Hahaha.
Surgery is not really scary, they give you a good cocktail and to sleep you go!!! I love my Dr and the nurses that take care of me when they see me coming ( it's pretty bad they know me on 1st name basis)!!!
Any how, I'm glad I stumbled upon this site, and I'm glad I'm not the only one out there with this. I feel as though we are all survivors from this eveilness, yes it may come back, but at least more and more dr's are being informed about this.
Good luck to all