Infected endometrioma: Hi I am currently... - Endometriosis UK

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Infected endometrioma

britchern profile image
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Hi I am currently waiting for a diagnosis as last month I had 3 nights in hospital with what they think was an infected endometrioma. It is 5cm on my left ovary. I had an intense episode of pain which resulted in an ambulance to A&E, who after taking blood tests said I had signs of inflammation and infection but he didn't know where from. He said I needed to go to the sexual health clinic as he thought it was an std, pelvic infection😯

I went to the clinic and they said straight away I didn't need to be there, did all the tests anyway which were negative and sent me home saying I should go to my GP and ask to have my ultrasound scan brought forward. (My GP had referred me as I'd been having intense pain for a few months, nothing like this though) I had a sleepless night with pain extending up my abdomen and managed to get in the gp in the morning. I explained everything and he said there was no way to bring the scan forward then he took my temp which was high and felt my tummy, I burst into tears😭 he asked me to wait in the waiting room and made a phone call. I was given an emergency referral to gynocology where I had an ultrasound and 48 hours of IV antibiotics.

I have now had a second scan and have a follow up appointment to, I presume decide on treatment next week.

I am in pain often but I would say I'm finding fatigue the hardest thing at the moment. It has been wonderful to read so many posts on here of symptoms I can relate to.

I think women are amazing to deal with this!

Sorry this is so long!

Anyone's personal experiences of similar would be much appreciated😊

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britchern
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Gembob1 profile image
Gembob1

Hi Britchern, I'm sorry you are going through this. I can relate to your pain and fatigue. I have had two endometriomas removed previously, the last one in Feb this year. I was stage 4. I now have a third and i believe it ruptured a couple of weeks ago, spent the night in agony in a+e but as soon as they realised it was not appendicitis they sent me home to see my GP, luckily he sent me for a scan immediately which discovered the cyst. I have now seen my surgeon who recommended I watch and wait because I have already lost some ovary. I have also discovered I have low iron and low thyroid function and since getting treatment for this I am starting to have a bit more energy so I would recommend you get these checked if you haven't already. I'm also seeing a naturopath and taking herbs and supplements which I believe are helping with energy levels. She says they will help break up adhesions which I'm prone to but I'm a bit sceptical about that. I think I got to a point where I thought I would try anything to feel a bit better and I certainly recommend complimenting conventional medicines with natural ones and heat packs are amazing. I hope you find a way to manage your pain. Sorry for such a long message.

britchern profile image
britchern in reply to Gembob1

Hi Gembob1, thank you so much for your reply it's so reassuring to know I'm not on my own! The Dr I saw in A&E said I was 'too young' to have a gynocologial problem (I am 36) after the horrendous pain I've now had 3 times I'm kind of constantly scared of it, a bit like a ticking time bomb ready to attack me at any point, I dread my periods too.

I will ask my GP about the fatigue and I am hoping my follow up appointment on Tuesday gives me a bit more info. I don't suppose they'll be able to tell how widespread my problem is until they look inside.

Definitely up for alternative treatments, I am already taking mutivits, probiotics, spirulina and fish oils, mainly to try and boost me up after the mega antibiotics in hospital and if i do have to have surgery I want to be as healthy as possible. Yes I am getting some relief with a hot water bottle.

Thank you again for your reply.

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