Hi girls it's been a long time since I was on here as I've not been good at all. Even though I know I should have been because I badly need your support. I've just resently discovered that I'm always going to be like this even after menopause because of the damage endo has done. Was actually looking forward to the menopause thinking Yes I'll get my life back. But No nothing is going to change.
I was diagnosed when I was 23/24 I'm now 48.
It has cost me not to have a " normal " life.
Not able to have babies.
Not able to do normal everyday things.
Not able to work from I was about rufly 26.
In pain constantly.
On " good " days it's like normal period pain.
On " bad " days I can't get out of bed as the pain is to severe and have to crawl to the toilet.
I can't make any plans to do anything as I don't know how I'm going to be the next day.
I could be good one day and bad the next or 1 2 3 days in a row.
Every symptom you can get for endo I have it.
That's me taking all my medication all it does it take the edge off it. Nothing takes it away.
Any way hope yous are all having a good day. Love Linda 😘 X
Written by
loobyloo69
To view profiles and participate in discussions please or .
Oh god I'm so sorry to hear that!! I don't think people realise the extent of how bad this condition is 😔 I hope it does get better somehow!! Good luck for the future xx
Thankyou Christina no most people don't actually know the extent of what it can cause. Some folk think awe a wee period pain aye right wish it was lol. Let them try and live with constant pain that can be so severe you can't even walk with it never mind doing anything. Plus all the other symptoms you get with endo because I get them all 😂
Hi Starry there are no specialist centre anywhere near me plus endo gyno there's nothing more they can do for me. Yes to Pain management was back seeing them again about a month ago sat and listened to him he said about a pain management program I said yes that would be good. Was on talking about seeing a physiotherapist again said yes to him about that as well. He then went onto say about about learning to sit walk etc because the way I was doing those was to protect myself against the pain I said yes that's right. He said they again they would learn me how to do it so I was able to start doing everyday things again. I said yes again that would be fantastic. He just kept going on about my back. Was going on and on nothing about my belly or any of that. He then held me leaflets about pain management programs etc then dismissed me.
By then I was absolutely ragging thinking it was another waste of time coming there he was actually not helping me with the endo at all. So I said to him excuse me you are wanting me to these things how am I supposed to actually get out my bed and crawl down the stairs to go to and do these things. He never said a word just sat there with his head down. By then I was nearly crying with dispare I actually started shouting at him asking him what was going to help me get out of bed when I was in agony ( which happens at least 3 times a week ). Told him I wet the bed when like this because I didn't know I needed the toilet be cause the pain was so bad. I actually apologised to him for shouting at him he said it was ok. There was nothing he could do about my stomach. I lifted the paperwork said another waste of time and said to him I really thought you could help me and walked out crying.
Sorry for the big speel
So I won't be going back there ha
Yes it's scar tissue and nerve damage from surgeries and it's to dangerous to do any more surgery because it will cause more damage. So now I'm always going to be like this
Hi Linda, I'm 45, I have no babies, I'm infertil because of the endo on my ovaries, got my left ovary removed 6 years ago, now my doctor is telling me to do hysterectomy and right ovary removal due to multiple cysts again, I feel your frustration, I'm trying holistic approach, not sure if it will help. Have you tried endo diet? I feel your pain!
Hi Pesik I'm so sorry about your endo journey * big hugs * hopefully it will help you. My gyno advised against having a hysterectomy as it wouldn't do any good that I'd be going through all that for nothing because it wouldn't help me any.
I really hope the holistic helps you a few years ago I was taught reiki and passed my first one. It helped for a couple of hours after the girls did it on me. But I had to stop going because I was no well all the time ☹️ No I haven't tried the endo diet because there are a lot of things I can't eat.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
doubt creeping in now...
Total hysterectomy - resentful 
How soon after a lap and removal of endo will my period pains improve I'm worried the surgery has not helped.!!!? 
Possible secondary endo 
