Hi all I had been clinically diagnosed with endo back in 2009 and told I cud have no more kids (having only had one girl) was devastated. . So To Take my copper co I l out and replace with marina.. In the mean time.. my miracle baby boy arrived!! Marina fitted after that no problems.. I had my coil replaced in Oct 2016 and was immediately in masses of pain having contraction like pains bit like I was told went away after 24 hours.. 2 week later I had horrendous pain again contraction like so presumed coil.. checked for string and they wer gone.. so rushed in to medical centre again to have a check.. 3 nurses foreseps and numbing gel that didn't work a boat load of pain and a lot of screaming later they finally came to the conclusion that they can't find my coil.. rushed to hosp.. had a scan.. coil in right place.. upon hearin c some of my other symptoms bleeding from the back with cloths funny bowel habits stomach pains in both sides of my low abdomen radiating into back and legs I was sent for a colonoscopy which came back clear.. not even ibs he said.. n no piles!! I was then referred back to gynea.. passed from one specialist to another.. lost notes and missed informing and 10 month on I'm still waiting in masses of pain wondering wat the he'll is going on with my body.. and on a massive waiting list for a Laparoscopy to diagnose endo properly. . In the meantime I'm to eat tablets for fun and jus put my life on hold.. its becoming so debilitating now iv had enough.. I am a personal assistant for a guy with dmd and told my boss I'm in pain im struggling and was told the only option was to leave I'm mortified that now it's guna effect my career.. don't no what to do for the best.. its driving me insane.. I go away on the 9th all my pain seems to start on the 9th. . And all I have is cocodamol which doesn't touch the sides.. any advise welcome and any similar experience and answers.. is it my coil have I got endo I just don't no????
Had enough: Hi all I had been clinically... - Endometriosis UK
Had enough
If it's severe long lasting and impacting your daily activities then you are legally protected under the equality act and entitled to request reasonable adjustments. Forcing you to leave would be disability discrimination.
Aww really.. they have said they can't offer amended duties to me that is my only option?? Which I Find outrageous. . I care for a man who is over 17stone and who I'm sure is meant to be a 2 to 1 but we all do alone and me telling them that I am struggling has resulted in a bad atmosphere and one option.. to leave and get another client?? Xx
The adjustments have to be reasonable. Swapping a 2 to 1 client would be reasonable.
Sorry so is this classed as a disability? ? X
Not automatically only aids cancer and ms are. This is because of the variability of symptom severity across people with the same disease.
Disability is defined by extent of impairment and it's duration. It has to last more than 12 months and impact ability to do day to day activities. gov.uk/definition-of-disabi...
And it has and does.. but I still have no proper diagnosis.. still waiting for the specialist to answer my query about mri or just hurry with the Laparoscopy cause this is ruining my life.. xx
Actually endometriosis is classed as a disability, but only for work purposes. Chances of getting PIP for endo is 0 to none, but we are protected at work! Xx
That's not actually accurate in law under the Equality Act. Some ladies on FB have actually successfully got PIP though it isn't easy as the government process isnt designed to be and lots of people are being deliberately and wrongly rejected ( including terminal cancer cases in my town) .
You can't partially class an impairment as a disability just in some scenarios, the equality law act itself doesn't work like that, you either are or aren't impaired severely enough and the Act covers non work things like accommodation and public access to services not just worker rights for example.
Oh right. I was informed recently that i was when my GP wanted me on laxitives longterm due to endo and when i said it was difficult with my job, told me i could take time off! Tbh its ridiculous. I have severe deep infilitrating endo and was awaiting major surgery and they signed me off ESA a week before! Surgery has failed. Ive tried everything since and thought about trying for PIP, but because i ended up jobless/homeless i had to take any job going *just been a home carer for 13 years so beggar couldnt be chooser* so ive gone back into retail to get my foot in door. It is only part time and i really struggle, but i know that will go against me if i tried for PIP! So i thought about tax credit disability, but my partner earns too much. So im like stuck in a part-time job really struggling (but coping just about) with nowhere to turn! But it is wrong because this disease is disabling!
Your so right , it's totally wrong. Legally and morally. There are so many hurdles put in the way, often deliberately for austerity cost cutting. Plus the whole sexist "it's just painful period" prejudice thing. I am not sure how the ladies did it but I've definitely seen several posts saying that they had been successful in PIP in Endo revisited, so it's possible but I don't know their exact circumstances or if they could work at all any more. Perhaps worth joining and investigating. the equality law has published guidance using chronic fatigue and mental health cases so on paper the definition is plenty broad enough to cover Endo impairment symptoms. Being believed and fighting a loaded system is the challenge.
The thing is i dont want to quit work. Really dont! I watched my dad suffer from severe depression after cancer left him housebound. Then come alcoholism, suicide attempt after suicide attempt. Although some days i really am housebound, i push through it! I work between 12-25 hours a week and im crippled. Physically and mentally. Its not like im not trying to fight this stupid disease, ive tried everything. Ive had 2 laps, 1 was complex surgery with 3 surgeons. Ive tried mini pill, combined pill, zoladex twice! I cant take any opiod painkillers cuz ive had 5 partial obstructions/impactions this year! Dr put me on strong NAIDs and i ended with an ulcer! Id love to beable to work full time, really would, but im honestly struggling part time. All i get from GPs is laxitives and sympathy thats verging on pity! I seems to be the inbetween! Not fit enough to work full time, but not bedbound enough for help! I mean i was that unlucky i couldnt even retain ESA, i think my chance of PIP is none but might just apply. Itll give them something to do processing my claim 😂😂 .. My prescriptions are in excess of £40 every Drs visit and im there almost weekly!
This is how to establish and demonstrate you are impaired for the purposes of the act
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