Mirena still left in during op & no diagn... - Endometriosis UK

Endometriosis UK

70,734 members52,159 posts

Mirena still left in during op & no diagnosis ?

Dreamboat78 profile image
4 Replies

Hi, can anybody help me ? I am so upset. Yesterday I went in for a diognostic laparoscopy after being diagnosed 6 mths earlier with a large hemmoragic cyst and another, both on right ovary. I have been getting continuous pain for mths with 2 severe attacks and pain to left side. I look like im about 4 mths pregnant sometimes, feel bloated, get nausia, sometimes lightheadedness, lower back pain, pains in top of legs, pelvic pain and pains in side and groin. I was told yesterday by a nurse who discharged me that everything is absolutely normal and there is no reason for my pain and it probably isnt gynae related. I assured her the pain is gynae related and I know something is wrong. She did not know my history of pcos, the diagnosis of my cysts and when I asked about the myrena I had in she wasnt sure what I was talking about and said doctor must have operated while it was in. I asked her can he do this or does it need to be removed and she said no, its fine it doesnt need to be removed. Is this true ? She told me I will see dr in 6 weeks time. I am in agony and was sent home with no pain relief. 😟

Written by
Dreamboat78 profile image
Dreamboat78
To view profiles and participate in discussions please or .
Read more about...
4 Replies
Fabbird profile image
Fabbird

Hi, sorry to hear you've had such horrible time. Because the Mirena is in the uterus I don't think there's any problem leaving it there during a laparoscopy. During the lap they look around the outside, not the inside.

Were you seen at one of the BSGE centres? If not, I suggest asking for a referral to one.

Good luck

Dreamboat78 profile image
Dreamboat78 in reply to Fabbird

Hi,

Awww, Thankyou for your reply, feel a little better knowing mirena is probably ok in during op. It was at a hospital. If these problems continue I think I will get a second opinion, every woman knows her body doesnt she ? Ive had a laparoscopy before as my right ovary was stuck on the wall of my uterus. I recovered quite well & cannot remember being so sore & in this much pain. The nausia is terrible. I am so upset they have not found anything & feel like I have gone through all this for nothing. 😞x

Fabbird profile image
Fabbird in reply to Dreamboat78

I don't think that is one of the listed specialist centres. You can look them up here

bsge.org.uk/centre/

I believe it's not uncommon for a general gynae to miss endo, so seeing a specialist would be the next step.

I hope the nausea passes soon!

Dreamboat78 profile image
Dreamboat78 in reply to Fabbird

Hi Fabird,

Thankyou so much, this is a big help. Its good to now have this info should I continue having problems. I really do appreciate it.

You may also like...

Mirena Coil or The Pill?

chocolate cyst, I had my last cyst removal in June (was a 15 cm, and then two orange sized cysts),...

Mirena coil during laparoscopy

Mirena during surgery and he said I’d have to speak to the surgeon about it on the day of surgery....

Mirena Coil and Left Side Pain

fitted about two and a half months ago now, the first month or so was so painful but I was told to...

Minor op for mirena coil this friday

Had my first laparoscopy yesterday! Still so confused!?

and unable to see her. I asked the nurse there and she told me I had a 4cm cyst removed from my...