I know there was a thread about this recently but I went to see the practice nurse at my GP's yesterday (she has been overseeing my care for the past couple of years and is fantastic) and she said she was appalled by some of the care I've received, and that I must just think the NHS is a disaster that should be scrapped.
I was really shocked to hear this from an NHS nurse, TBH. I have had some appalling care, though I have also met some amazing people - my nurse, the specialist surgeon at my BSGE centre. But we endlessly get the message that the NHS is amazing and must be protected at all costs and my experience has been that it is 20% amazing and 80% lazy incompetence. Not just the GP who misdiagnosed me, insisting that I didn't have the symptoms of endo and it was IBS, to then telling us over the phone on a friday afternoon that it was probably cancer. The junior doctor in A&E who gave me 2 paracetamol when I went in desperate for pain relief and said that he didn't really know anything about endo or any of the drugs I was on. The A&E staff who missed that I was bleeding internally after my first surgery, the anaethetist and his team who forgot to fit my PCA after my hyst and bowel excision and sent me back to the ward with no prescribed pain relief (it took them over 2 hours to get a doctor to the ward after I first started asking for pain relief, by which time I was hysterical). The night duty nurse who took an hour to bring me oramorph after I asked for it. The gynae team who forgot to put in a catheter after they packed my vagina when I was readmitted with a massive bleed, the night duty nurse who told me it was just a UTI when I spent the night in agony because I couldn't pee. They drained nearly a litre of urine from my bladder the next morning when the consultant came round and realised that they'd forgotten the catheter and I then had to spend a second night in hospital because they'd given me a UTI as a result.
No point to this really, but in hindsight I am really shocked and actually quite frightened by how bad the treatment was. I don't know how we go about getting better care, but surely it should be better than this.