Endo, IBS and vulvodynia = No energy... h... - Endometriosis UK

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Endo, IBS and vulvodynia = No energy... has anyone tried hypnotherapy or other therapies??

Rachel1million profile image
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I had surgery for endometriosis 6 years ago, it was mainly around my bowel and I have struggled with IBS ever since the surgery. During the same operation I had a Mirena coil fitted, and am now on my second one. This has really helped as I no longer have proper periods and previously my periods were so heavy I used to pass big blood clots, some months the pain was actually worse than my experiences of child birth. I do still experience low level abdominal pain like a constant dull ache, I also have a diagnosis of vulvodynia which I suspect is linked to endo. I really want to start exercising but I am so tired and have no motivation. I have read about people with endometriosis using hypnotherapy to help with motivation to exercise and that exercise really helps symptoms. Anyone have any experience of this? Or other ideas?

I have seen gynaecologists, dermatologists, psycho-sexualtherapists, a bowel specialist and even a neurology pain specialist but nothing seems to work.

I have never posted on here before, but stomach has been so bad lately... I have two kids, I work and am doing a masters degree and my partner works away through the week and I just feel as though I am floundering... I feel that I need to take control through diet and exercise but just have no energy or time to myself... been sent home from work today, stomach so bad given me a pounding headache... if anyone has any tips I would be grateful...

Thanks...

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Rachel1million
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I follow a strict diet of no red meat, no dairy, no alcohol 😩, no wheat, gluten or sugar.

I follow the endo diet and lots of great recipes on Pinterest also the endometriosis diet book is great it's easy recipes.

in reply to

Indian diet base is great, lots of turmeric, cumin, other natural spices and herbs help to aid digestion, relieve swelling and inflammation. I had endo removed from my bowelso after 4 years of hospital thinking I had colitis, I was hospitalised for 2 weeks and seen a specialist for colitis for 4 years 🙁. In the end it was endo causing all the problems. I feel your pain x

in reply to

I am a holistic therapist and would highly recommend reflexology and full body lymphatic massage and a light stomach massage

Suzied2b profile image
Suzied2b in reply to

Baillie37 what is this endo diet you mention I've never heard of it, but I'm in constant daily pain and would love to try anything. Xxx

in reply to Suzied2b

This is info on the diet book, you can get from amazon or try second hand on eBay.

Carolyn Levett is a previous sufferer of endometriosis, having healed with the support of diet and a great homoeopath. The author runs the Endometriosis Support website site at - endo-resolved.com which has been on-line for a number of years, and provides much valued support for sufferers of endometriosis from around the world.

The website includes extensive information and articles about natural treatments and self help advice, diet and nutrition, detailed advice about symptoms, treatments, laparoscopy guidance, list of specialists and support groups, success stories from other women, plus helpful free mini e-books.

She has since written two endometriosis self-help books for sufferers which are:

'Recipes & Diet Advice for Endometriosis - New Edition Updated' March 2013

'Reclaim your Life - Your Guide to Aid Healing of Endometriosis'

You can also get more regular tips, advice and information about endometriosis at the Facebook Page at: facebook.com/ResolveEndomet...

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Rachel1million profile image
Rachel1million

Thanks, that's really helpful, I'll check out Pinterest. Does feel like you get sent to all these different specialists but none of the treatment is joined up... feel like there's no point going to the dr anymore just need to start being proactive for myself! Thanks again x

in reply to Rachel1million

Yes totally agree my lovely, if you enjoy cooking you will enjoy this diet x

Also acupuncture is great, does your hospital have an endometriosis clinic? If so you can speak with them to be put forward for clinical trials, I did a few trials and the support was great as the doctors are trained in endo so have better knowledge and understanding.

Check the endo uk websight for local hospital endo clinics in your area

Rachel1million profile image
Rachel1million

Thanks I'll have a look... xx ordered a cookbook already 😊

in reply to Rachel1million

That's great :) it's a good feeling when you have a little control on your health x

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