Worried & Confused, Please help): - Endometriosis UK

Endometriosis UK

72,746 members53,177 posts

Worried & Confused, Please help):

Fayth_Fel profile image
7 Replies

Hi everyone,

I need your opinions on this!

I heard that endometriomas grows really quickly, but my gynae mentioned that most of the time it doesn't cause a drastic change in size in most women.

So I am pretty confused, I am not advised to go for surgery at this age and I am not under medication. What can I do?

Written by
Fayth_Fel profile image
Fayth_Fel
To view profiles and participate in discussions please or .
Read more about...
7 Replies
JulesUK profile image
JulesUK

It really does differ from person to person. For some it grows fairly quickly others can go for years and years without a problem. How were you diagnosed? Have you received any treatment or procedures at all? x

Fayth_Fel profile image
Fayth_Fel in reply toJulesUK

Hello.

i was diagnosed with anemia and the doctor suspected that it's due to excessive bleeding during menstruation. They did an ultrasound and that's how they found out that I have bilateral cyst. I am not receiving any treatment at the moment. They just placed me under observation for another 9 months. I am so scare right now, 9 months is way too Long.

ThaliaThalia profile image
ThaliaThalia

Are you in a lot of pain? If so, you'll need another scan. x

Fayth_Fel profile image
Fayth_Fel in reply toThaliaThalia

Hello.

I don't experience a lot of pain just a little discomfort during menstration. But the worrying thing is that my cyst are quite huge ):

ThaliaThalia profile image
ThaliaThalia

If you're not in much pain and the scan looked okay, they might view surgery as unnecessary stress for you.

What size is the cyst?

Mine (satsuma-sized) was removed because the pain was affecting my quality of life. My mum's (grapefruit-sized) was removed because it was causing her too much pain.

What is it specifically that you're afraid will happen? I might be able to better help you if I understand the basis of your fear. x

Fayth_Fel profile image
Fayth_Fel in reply toThaliaThalia

Hello Thalia,

Thanks a lot for sharing your experience with me. They mentioned that surgery may not be the best option due to my age.

I have got a 5.4cm and 4.4 cm cyst. They mentioned it has to be over 5 cm In order to proceed with surgery.

I am just afriad that the cyst may grow/ burst after each menstrual cycle and because I'm not under any medication to suppress it. And I would have to wait for at least 9 months before the next scan. It's the fear of not knowing what might happen within the 9 months):

ThaliaThalia profile image
ThaliaThalia

Thanks for helping me understand. What age are you?

I've had a ruptured cyst. If you notice any change or worsening in pain, get to A&E and let them know you suspect a swelling/rupturing cyst. The hospital can then scan you and / or remove it.

I recommend having codeine in your handbag at all times to give you a feeling of security that if any serious pain hits, you can reduce it. Have hot water bottles in the house, too.

I empathise with what you're feeling. I was really scared throughout the first cyst process (the one that ruptured).

You'll know if something changes. I was able to get to A&E days before mine burst. It was only because a breathtakingly incompetent gynae sent me home with a misdiagnosis that mine did burst.

If you think the worry isn't going to go away, private surgery might be worth it (if you have spare cash). Another option is to explain to your G.P that you're afraid and see if they'll write a letter to the hospital requesting surgery (if that's what you want) or perhaps more regular scans.

I hope this helps. x

Not what you're looking for?

You may also like...

Help please. Scared and confused

i havent been on here in a while due to waiting for my appointments and so.. ive only written one...
begart profile image

Left very confused and worried!

Hi everyone, I had an appointment yesterday with the gynaecologist and they have said if I had...
BeckyR84 profile image

HELP, PLEASE READ

Hi, I'm 16 and for the last 2 years of my life I have been experiencing the most painful and...
Saoussane profile image

Feeling confused!

I had my first appt with a gynaecologist yesterday and listed all my symptoms which are : painful...
Cocohoney1 profile image

Please help!

Hello my lovely ladies. As many of you know, I have Endo and Pelvic Congestion Syndrome. I...
becca97 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.