Don't know how much more endo pain I can cope with.

[Sweetyassi]

Hi,

I'm coming to the point in my life that I can't cope emotionally or physically with these endo pains. My operation was meant to be in June but found out today that it's been pushed to August now. I can feel my right ovary stuck to my bladder and bowels. My whole body hurts so much, I feel like I'm going crazy with pain.

Sweety.

[acooke12]

I feel like I'm going crazy too! My first laparoscopy is in August! Have you had one yet? X

[Sweetyassi in reply to acooke12]

Hi acooke12,

I will be having my 7th operation in August. It never ends

Good luck with your operation in August.

Sweety

[acooke12 in reply to Sweetyassi]

Hi Sweetyassi,

Will the operations just continue? Surely there are other operations rather than just continuous operations? Mentally I am struggling to cope already.

Thanks

[Sweetyassi in reply to acooke12]

Hi acooke12,

Everyone is different, some women after having one operation are fine and have no more problems. I'm however a difficult case, once endo is removed it comes back a few weeks later. No painkillers work for me. I'm struggling with depression and anxiety and sleeping disorder I have high stress levels. You're not alone struggling with this so many women are struggling along with you.

Do you have support at home? Anyone to talk to?

Sweety.

[acooke12 in reply to Sweetyassi]

Hi Sweetyassi,

I have depression because of it, but I also have a very stressful job which aren't accepting my illness and they don't think I am physically fit for the job. My fiancé is great but because it's 'invisible' others don't see why I'm so poorly some days. I am considering leaving my job but I think then I am giving up x

[Sweetyassi in reply to acooke12]

Hi acooke12,

That's the problem, because it's an invisible illness some people have trouble believing that your ill. I haven't worked in 8 years because of endo. Stress makes the pain worse. You need to try to reduce your stress levels.

Sweety

[acooke12 in reply to Sweetyassi]

Hi Sweet,

Thank you for your help. What makes it worse is the stress of trying to work out if I can afford to not work! What a viscous cycle!

Thanks xx

[Sweetyassi in reply to acooke12]

Hi acooke12,

I know understand how you feel. Stress never ends.

Can you work part time?

Sweety.

[acooke12 in reply to Sweetyassi]

Nope never ends yeah I'm going to see what hospital say in August and go from there xx

[Sweetyassi in reply to acooke12]

Okay, good luck with everything. I'm here if you need to talk.

Sweety

[Lou7707]

Dear sweeti

Sorry to hear this. If you need someone to talk to, we have a team of people on our helpline who would be happy to have a chat.

endometriosis-uk.org/helpline

Louise

Endometriosis UK

[Sweetyassi in reply to Lou7707]

Hi Lou7707,

Thank you,

I might have to talk to someone on the helpline. I can't talk about it with my hubby or kids. I feel very lonely.

Sweety.