I'd like to say when it comes to my diagnosis of Endo, I think I've been one of the more fortunate ones. The reason I say that was because I didn't realise there was a problem until the word Endometriosis was mentioned to me at a routine scan.
My husband and I were in the process of beginning IVF due to other fertility issues and before we could start I was told I would need to have a transvaginal scan just to make sure everything was functioning ok. I'd been asked by our consultant whether I suffered heavy periods, I answered no and I was asked whether I suffered painful periods and I answered no. Now when I look back I don't know why I answered no... I don't know whether I just assumed everyone had periods like mine or whether I just answered no in order to smoothly start the IVF process, it was probably a bit of both. Anyway long story short I had a scan assuming everything would be fine and during the scan I was told that there was a problem. I had a large cyst on my left ovary and what appeared to be signs of Endo... I was asked to sit in the waiting room while blood tests were organised. While I waited I frantically researched Endo and soon realised that I had nearly every symptom and that how I felt wasn't "normal".
I had my lap surgery which diagnosed stage 3 Endo, I wasn't surprised however had naively assumed removal of my ovarian cyst would miraculously rid me of my symptoms however I'm still struggling daily with stomach aches, pain and fatigue.
I went to my usual GP today hoping for something to be done about how I'm feeling, his response was that unfortunately these are just symptoms of Endo and that was that... I was a bit shocked at the response from the GP and as I walked out of the doctors surgery I feel like it actually dawned on me. I've been diagnosed with a chronic illness. The GP won't help.
I felt like I had understood my diagnosis when I was first told however I think today is the day I've only really understood what living with Endo really means...
I thought I was a tough person who would just handle this. Today I've realised this is going to be hard.
I'm sorry for the long post, my husband and family are supportive but I just feel like I needed to share with people who truly understand.
Try to keep positive everyone, even on the many tough days. X