Endometriosis UK
34,797 members31,023 posts



Hi there, I live in Manitoba, Canada. I have had endo for 30 years already but the worst of it has been the last 16 years. Not only the physical pain but the pain of getting help from the medical community. After my last baby the doctors removed my uterus and my cervix. Then 4 years ago he took my ovaries. It took 4 years of trying to convince them that I still have them to remove. They could not see my left side on the ultra sound because it had so much scaring that they could not see it. I have not had any pain relief after this last surgery like the first one. I have so much pain, bloating, IBS, IC, migraines...Im taking hydromorphone and tylenol 3 for pain. It is better than being on Fentynal, like I was 4 years ago.

I get so bloated that I look 7-9 months pregnant, what do I do to fix that?

Please help.

1 Reply

Hi there I'm sorry since i live in the UK i haven't slept but I'll reply with a reply I wrote to someone else so please take what benefits you from it. Please message me later and get in touch. Hey there! I'm Fawziya 22 and have always had endo since I started my period at 14. my situation is similar to yours. i also have really bad circulation in my legs as well as really bad anxiety being bi polar etc. I could add more but I'll get to how I personally manage it at the moment. I've always been ill since young and when I reached my teens I eventually gave up on conventional "cures" or drugs. instead I use holistic methods. from what I have read surgeries the pill and other drugs or contraceptives don't have a long lasting effect. You HAVE to sort out you diet even if you use conventional medicine. If you are willing to pay you should really consider Traditional Chinese Medicine. I went to The Chinese Clinic in Balham SW London. I swear to you best decision i ever made, they gave me herbs acupunture and massage. It really helped with my anxiety pain and it wasn't instant but after going 3 times a week for a month i felt cured. They have a specialist there who specialises in fertility and women problems such as endo menstruation. What was surprising was the fact that instead of having to explain and feel crazy about what symptoms i have, they told me things that i didn't even think were related to my endo. If you are interested ill give you the contact details. Furthermore, if you decide to do acupuncture or not, for the "IBS" you get from the disease i would recommend a detox, like a juice fast then to slowly start eating healthy. Research the Anti-Oestrogen Diet- it as specifically designed for women like us. One of the causes of endo if not 'THE' cause is xynoestogens which are produced by the toxic lifestyle we have nowadays. Additionally, what instantly helped with the "Shocks" is replacing your pads or tampons with non-toxic ones i use brand called natracare you can find them in waitrose or online. Endo sufferers are always low in nutrients especially: Magnesium, B12, Vitamin D, Iron and Zinc. Not only should you incorporate foods rich in these nutrients you MUST take them in supplement form. Magnesium helps with the cramps, muscle pain, tiredness, fatigue, depression and also softens bowels. B12 in dosage of 1000 helps nerve pain and in some cases has cured endo because B12 aids in the regeneration of DNA cells. It also has helped cure some people's cancer. You should watch a documentary on youtube called ' Cancer the forbidden cure' worth the watch. As for the suicidal thoughts, Rose really, truly, i understand your pain. I am so sorry you have to go through what your going through, i have the dark thoughts regularly too. YOU ARE NOT CRAZY. YOU ARE NOT ALONE. YES YOU ARE YOUNG BUT ENDO DOESN'T DEFINE YOU. Think of the strength we have to endure such pain and still be alive. If ever you need to talk please feel free to message me. IT WILL get better! Don't believe the lies many doctors tell you! since you said you find it hard to manage, you should go to your gp not for the endo but for CBT (Therapy) it may help you manage your anxiety with not being able to cope. Also I get the feeing it distresses you a lot thinking about your image. Do you know how many women bloat even though they don't have endo?! You know Endo is often caused by stress as well and then when you get endo it causes hormonal imbalance resulting in more stress which in turn worsens the endo. stress also damages the liver and therefore you are unable to fight off the disease. Your body often can't manage stress when you have a lot of repressed emotions and conflicts. I really hope you are okay. Figure out what is really bothering you inside? What Can't you accept? If you hate something or feel hopeless try another method. Don't ever give up. With love your sista from anotha mista Fawziya xxx MWAH ....btw please excuse the grammar as I haven't slept and I couldn't be bothered to check let alone retype!


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