Endo after menopause?

I am 58 and have been struggling with almost daily pain for the last 12 years. I had my ovaries removed 8 years ago but did not notice a huge benefit then I was shunted off to urology where I was diagnosed with interstitial cystitis. Urologist now suggests that it may be the endo that's giving me all these aches and pains. I would like to know if anyone else has been in a similar position after the menopause, I thought it was all about hormones. I am new to the forum but it's reassuring to read I'm not the only one who takes a hot water bottle everywhere, including holiday in the med!

4 Replies

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  • Sorry, don't know from my own experience, but I'm 42 and have a mirena coil and when I saw an endometriosis consultant in January he said "you're only 1 or 2 mirenas away from the menopause and your endometriosis will go away then" (I'm paraphrasing). This would suggest his belief, as an endo expert, is that endometriosis goes with the menopause.

  • Thanks for taking the time to reply - I am so confused by it all!

  • Sorry to say endo doesn't necessarily go with menopause. I've had a hysterectomy and my ovaries removed and am in daily pain. Finally had lap that diagnosed endo had remained. It was lasered off which unfortunately doesn't treat it so I'm now awaiting excision with bsge centre.

    If there is enough endo it can produce oestrogen to feed itself. Or hrt can feed it or the ovaries so there are options as you can see

    Get yourself referred to a bsge clinic and prepare for a fight as many people do not believe endo can grow after menopause or hyster but I'm evidence it can.

    Good luck

  • Hi Marcia, thank you so much for your kind message.

    After always having painful periods I was looking forward to a pain free life but here I am, having more bad days than good. My main symptoms include almost daily abdominal and pelvic pain, frequency of urination, leg pain and bloating and now my back has joined in the party!

    In a strange way your message is reassuring because it enables me to believe that if I get a positive diagnosis for endo then something could be done about it. It's such a limiting condition, sometimes the physical pain and the negative effect on my life really get me down.

    I am hoping to be referred to a BSGE clinic in Bristol and I only hope that the waiting lists are not too long - I've got so much I want to see and do and I have already spent far too much time in bed curled up with a hot water bottle!

    Thanks again

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