Hey everyone. My name is Nina.
I just joined this forum, basically I am positive I have endometriosis although it's not been diagnosed. I am seeing a doctor on Friday to express my thoughts on this but just thought it would be a good idea to get some thoughts from anyone here too.
Let me explain what I've been experiencing:
I've always had painful periods but the severity of the pain varies every month, there have been months where I almost pass out with the pain, and I have to take pain relief almost always on the first and second day, otherwise if I'm at work I can't do my job without the pain relief.
Another symptom I get which first started back in 2010 is pain on having my bowels open particularly during my period but I also get a sharp pain opening vowels even when not on my period, the first time it happened (in2010) the pain was so sharp I couldn't sit down for a while, and it kept happening the following months (when it first happened I believe I had just stopped using the pill after being on it for I think 2years) nowadays the pain isn't as sharp on opening bowels but still happens for sure.
Lately another symptom I get a lot is period pain even when I'm not on my period, I have this period pain intermittently for 3 weeks (1 of those weeks is when I'm actually on) it's almost like the pain starts and I expect my period to come but nothing happens and this has been happening more often lately, I'd say for around the last 3 cycles.
I am worried it has always been endometriosis that's causing the above symptoms but perhaps it's getting worse, also I have got married recently and we are trying for a baby but I am aware endometriosis can cause infertility which is my biggest worry really, at the moment it's been 7 months trying but if there is something going on I'd rather know sooner rather than later so that perhaps something could be done about it.
But equally I am very scared of having surgery, but I am aware it's the only way to diagnose endometriosis unfortunately....
I have done a quiz today related to the symptoms I've been experiencing and it suggests I am at high risk of having endometriosis which makes me even more convinced, am I right in thinking this could be endometriosis?
Sorry for the long post, any thoughts are appreciated