Hi was hoping for some advice.
I was on the depo injection for many years when I stopped to try and concieve I started having pains it was always thought to be water infections but after a laparoscopy I was told I had small sites of endo dotted around some of which found near my bladder cavity and pouch of Douglas so that made sense to me.
I have since managed to have two babies and have managed my endo best I could. I was however reluctant to go on any long term contraception as I wanted to leave the door open for more babies and all the contraception so far has given me side effects I wasn't enjoying. I was also trying to deal with the endo via diet and hollistic healing I am very determined and found a lot of my bladder pains (worse during ovulation) subsided and actually for many months lay dormant. I wanted to believe I could manage it without the xtra horrid hormones. Recently though I had a major major flare up and I felt like my kidneys weren't functioning I started getting flank pain swollen in my back and my bladder pains went off the scale I was scared and confused I had all the kidney tests at the Gp and was told they were fine. But I definitely wasn't fine. Couldn't drink coffee alcohol started feeling breathless quick seeing a lot and the more I stayed hydrated with water the worse it got throughout the day! After research I felt the endo might be blocking one of my drainage tubes as all my symptoms matched. My GP agreed as I had chosen not to use contraception over the last year and after seeing an endo consultant/specialist I have just had a laparoscopy yesterday.
I have come home feeling rather sad and feeling depressed. I haven't had a full written explanation but the laparoscopy was successful and the consultant found and cut away a small patch of endo on my left side however it was not explained to me if this was at all effecting the kidneys drainage tube and I was subsequently told I was the best case of endo he'd seen and he had only removed this one small patch. I felt a bit like I'd wasted everybody's time. Obviously I don't want to be riddled but the inflammation the pain the impact it's had on me I expected to have found more than a small patch!! The pain and my symptoms over the last three months have been unbearable it has taken over and my kids have been effected. But I was adamant it was the endo causing my bladder pain and it was subsequently getting worse and effecting the ureters!
I suppose what I'm confused about is that I had endo on my pouch of Douglas and bladder cavity before yet no mention of it now so it's gone great but I also wanted them to check inside my bladder coz I believe all my cystitis like symptoms suggest it was infiltrating my bladder! They haven't put a camera up inside my bladder at any point but surely the consultant would of seen endo from the outside too right??
Can endo grow inside the bladder but not be present outside? Can I just ask my GP to refer me for that even though the specialist hasn't said I need it?
Could a tiny patch of endo been swelling and effecting me however small?
Am I a bloody idiot for not taking the contraception?
all my family think I need to stop worrying now move on and take the pill or depo but the side effects aren't great and I really wanted to find a way of managing it natural if I could.
Any advice? Feeling very sad and like everybody things I'm mad!! xxx