So, I am totally at my wits end now. I'm 26, will be 27 next year. It's about 9 years since I began visiting the doctors about heavy periods. When I reached university, having only ever had what I would now call "normal" period pains in my entire life, I fainted. I am not the fainting type. Three years later towards the end of my degree, having been on the pill taking seven day breaks, I'd had a hospital referral with an internal exam. The female doctor had said - "you probably have endometriosis, I'm sure, particularly, in your left pelvis". She then recommended I stay on the pill, and if I ever want kids she "strongly recommend(s) having them before you are thirty". I left and burst into tears, I was 20 and just about to graduate. I didn't even know if I wanted kids, never mind being given a time stamp.
It is now 5 years since that appointment, nearly six. I have in the past 6 years suffered innumerable boughts of bloating, not solved by cutting out diary, wheat or any other food group/caffeine or alcohol. I am nauseas alongside this. I often during these weeks or days have the appearance of someone who is 6 months pregnant. I have become one of those people who needs a wee constantly.
I have been to the doctors about these things and been tested for everything, saying several times to the doctors - could this be something to do with the supposed endometriosis. My pain has also gotten much worse, particularly in the past 3 years. I began to have spasms and dull aches in my hips and lower abdomen and period pains even when not having a break in my pill. After being advised to only have a break twice a year I then had a break after six months of taking the pill without a break. I am a teacher and I reserved this for a holiday week last February.
IT WAS HORRENDOUS.
It was so heavy my mooncup overflowed. I couldn't walk. I was so glad I was home alone and Nick wasn't in because I know he would have called an ambulance. This pain took me to the doctors that same day, I dragged myself in after finally picking myself up off the floor in my towel. When I spoke to that same doctor they referred me yet again (second one in a six month period, still not officially diagnosed here). He said "it's okay though as you have holidays to have these breaks in". I will never forget the look on his face when I stood up and walked out of his office in tears at that.
So I went to my second referral (my previous one had come up with nothing despite all tests but the doctor said implicitly I needed a second opinion and this meant nothing, but his feelings were that due to my age, no matter what, I do not get the surgery). The woman was brilliant, she said I looked healthy in the internal exam (she didn't do a ultrasound), but that due to everything I've said it's quite clear, alongside my family history that I have endo. She then said to continue with what I'm doing. Again, she recommended that if I want children I "save" a laparoscopy for potential infertility problems which would be "solved very easily in a routine way if that occurred". I left feeling more positive, but again, asking about all other symptoms (nausea, bloating etc) got very little response other than "it very well could be".
So my last doctors appointment was with a female doctor in the same doctors. I explained again everything. She checked my stomach, (prodding) told me it felt fine, but then did say that I need not have a break in my pill at all and I should not have been told this. She gave me enough pills for 8/9 months, and again reiterated that another referral could only offer surgery, rather than ongoing treatment, and that it's better if I don't go down this road.
So, here I am, I have looked briefly into private healthcare insurance and I'm considering it to get a better opinion. It's going to be expensive though, and I just don't know what to think or feel anymore. I just don't feel like I'm being taken seriously, and it takes a lot not to just want to break down and cry when I go into the doctors with the same symptoms over and over again.
Just FYI, on top of these, I also regularly have - period pains after sex, bleeding after/during sex, major spotting regularly on the pill, pain during and after internal exams, fatigue.
Just to mention, I am a bodybuilder, I run and keep myself hydrated, I rarely drink more than 1 or 2 glasses of red wine a week and I get 8 hours of sleep. I try not to have dairy at all and haven't for several years.
What on earth do I do next as I am tearing my hair out?
Do I push for surgery and official diagnosis?
Does anyone else have the gastrointestinal problems I've had?
If I hadn't done the research and didn't know it was a load of rubbish I would have asked my long term partner to have kids by now as I've been told many times by many doctors that "things are often much better". Sadly I'm aware this solves nothing.